More coming soon . . .
We can all Give in some way . . .
Join us for #GivingTuesday, November 30, 2021
Here at Myositis Support and Understanding (MSU) we believe in giving and in kindness overall. There are many ways we can give. Some may include a cost, while others can be done by sharing your time and your skills. Join us in spreading how we can give to help the myositis community.
If you are able to make a donation, thank you. Also, be sure to ask your employer if they have a gift matching program. It’s an excellent way to double your donation and highlight giving and generosity beyond the myositis community.
See various ways you can give at Understandingmyositis.org/give and join us in #Giving4Myositis on #GivingTuesday.
We thank you for your support and we thank you in advance for your generosity. We can’t do this without you.
Unleashing the Power of Radical Generosity Around the World
Since its inception in 2012, #GivingTuesday has grown to become an international celebration of giving. Observance of Giving Tuesday has spread across the globe, demonstrating the power of communities coming together in support of causes close to their hearts. Giving Tuesday reimagines a world built upon shared humanity and generosity. Whether it’s making someone smile, helping a neighbor or a stranger, campaigning for a cause we believe in, or simply giving of what we have to those in need, every act of generosity counts and everyone has something to give. And every act of giving makes the world just a little bit better place.
💙 How will you engage in Radical Generosity?
What is #GivingTuesday?
#GivingTuesday is a global giving movement that has been built by individuals, families, organizations, businesses and communities in all 50 states and in countries around the world.
This year, #GivingTuesday falls on November 30. #GivingTuesday harnesses the collective power of a unique blend of partners to transform how people think about, talk about, and participate in the giving season. It inspires people to take collective action to improve their communities, give back in better, smarter ways to the charities and causes they believe in, and help create a better world.
#GivingTuesday demonstrates how every act of generosity counts, and that they mean even more when we give together.
What is #Give4Myositis?
We need your help. Make an impact on the lives of myositis patients by giving as little as $5. Make it a recurring monthly donation to give all year long. Your donation will be used to fund our essential myositis patient financial assistance program so patients can stress less about finances and focus more on their health, as well as our education, outreach, and patient-centered research work.
Whether it’s sporadic inclusion body myositis, dermatomyositis, immune-mediated necrotizing myopathy, juvenile dermatomyositis, antisynthetase syndrome, clinically amyopathic dermatomyositis, or polymyositis, we help myositis patients live their best possible lives despite the challenges and limitations they face. You can ensure we continue building and expanding our patient-centered support, education, and advocacy programs, and patient-led research initiatives that matter most to myositis patients.
Launch your own fundraiser
Create a Facebook Fundraiser
Easily create and share your own #Give4Myositis fundraiser. Be sure to include your story, why you choose MSU, and share the fundraiser, with updates, often with your family and friends.
Join our Fundraising team
Easily create a fundraiser by joining our team on Give Lively. Customize the fundraiser with your story and why you choose MSU. Share and post campaign updates to promote interest.
Donate for #Give4Myositis
Contribute to help continue and expand the our vital patient financial assistance program, support and outreach, and funding patient-centered research projects. With your help, we can strive to improve a patient’s quality of life while we research to find therapies to treat myositis, and ultimately find a cure.
Myositis affects every aspect of a person’s life; the physical, mental, emotional, financial, spiritual, and relationships. As myositis patient’s ourselves at MSU, we know firsthand the battles patients face with off-label use of expensive medications, the need for costly mobility and assistive devices, travel expenses to see one of few myositis specialists, and exorbitant medical bills.
Our financial assistance program helps provide much needed financial relief for patients, whose lives are already stressed due to illness, allowing them to more fully concentrate on their health.
Donations by check
Donate by Mail
Make your check payable to MSU and mail to:
MSU, 9125 N. Old State Road
Lincoln, DE 19960
Add Giving Tuesday or Year End in your letter or in the memo field of your check donation!
Shop Amazon Smile
Whether #GivingTuesday, the holidays, or just a regular ole’ shopping day on Amazon, be sure to put a SMILE in front of Amazon!
When you shop this way, Amazon donates a percentage back to MSU helping us with our fundraising efforts. You can just shop as usual and still help MSU!
It takes 250 plasma donors to treat one myositis patient for one year with IG therapy! We face a potential shortage of life-saving immunoglobulin therapy without an increase in plasma donors. Plasma donation is essential to create treatments for rare diseases such as Polymyositis, Dermatomyositis, Immune-Mediated Necrotizing Myopathy, Juvenile Myositis, Antisynthetase Syndrome, and even for Inclusion Body Myositis in some cases. If you can’t donate plasma, ask a friend or family member to donate. We are a proud supporter of the Immunoglobulin National Society’s (IgNS) #ItsMyTurn campaign.
This detailed video takes viewers through all of the steps a first-time plasma donor would experience during the process of donating lifesaving plasma. This video was created prior to the pandemic.
Donate Plasma for medical research
If you are living with myositis, this is a paid opportunity to donate plasma for medical research, like detecting new autoantibodies, and manufacturing diagnostic test kits used in labs to test a patient’s blood for the autoantibodies. This is not whole blood donation.
We have worked together with Plasma Services Group over the past year and their level of dedication to the myositis community is inspiring. Learn more about the process, or go ahead and register using the donor form.