Community Orientation Webinar

If you were not able to attend this exciting webinar, watch the recording above.

The Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on June 7, 2024, will be an exciting opportunity to inform the U.S. Food and Drug Administration (FDA) and other stakeholders about the patient and caregiver perspectives on living with dermatomyositis.

In this Community Orientation Webinar, you will learn how dermatomyositis patients can participate virtually in this first-ever meeting for Adult Dermatomyositis. James Valentine and Larry Bauer of Hyman Phelps McNamara will help you understand the drug development process and the role of the FDA and what will happen at the meeting on June 7. More importantly, they will discuss how YOU can participate that day through polling questions, call-in comments, and written submissions on your journey with dermatomyositis.

DON’T MISS THIS OPPORTUNITY TO MAKE SURE THE COLLECTIVE VOICE OF HUNDREDS OF PATIENTS ARE HEARD!

Be sure to visit the dedicated website for this project for updates and more. Click the button below to visit the site.

Subscribe to our YouTube channel

Embark on a journey of empowerment through understanding!

Subscribe now to the MSU YouTube channel, filled with recorded webinars and other videos such as valuable education from experts, patients, and care partners, along with resources, clinical trial videos, and support for navigating life with Myositis. And, don’t miss our “Exercise in Place series!” (You can also subscribe by hovering over our logo image in the top left hand of the video above)

Tags:

Author:

Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

0 Comments

Leave a reply

Your email address will not be published. Required fields are marked *

*

This site uses Akismet to reduce spam. Learn how your comment data is processed.

© 2024 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

Log in with your credentials

or    

Forgot your details?

Register for Free Membership

Send this to a friend