The Myositis Association Annual Patient Conference @Home is scheduled for September 11-13, 2020. This year’s virtual conference will enable myositis patients, caregivers, and myositis experts to come together globally. Last year, MSU started a fund in memory of Mary Jane DeLauder (MJ), a passionate patient advocate and MSU support group leader with inclusion body myositis. Mary Jane and her husband Dick were strong supporters of the Annual Patient Conference as a way of educating and fostering involvement and collaboration in the myositis community. To continue her legacy, MSU will award scholarships to numerous inclusion body myositis patients and caregivers to attend under the Mary Jane DeLauder Memorial Fund. We support the Patient Conference and want to make sure as many people as possible have the opportunity to attend virtually. Therefore, this year we will also award scholarships to patients and caregivers who are dealing with all forms of myositis.
To apply you must be a registered member of MSU and a resident of the U.S. Applications will be considered for myositis patients and caregivers who are unable to afford to attend. Applications will be accepted through August 8th and applicants will be notified the week of August 17, 2020.
Do you know someone interested in donating? Please share the Mary Jane DeLauder Memorial Fund page. The memorial fund is used to help educate and connect those living with inclusion body myositis by providing annual conference scholarships and includes their caregiver along with all fees and associated travel expenses.