Advocating for Myositis Patients
Myositis patients deserve a loud voice
You can join us by volunteering to write letters to lawmakers while also meeting with your local government. One specific way you can help is to write your state and local government to get proclamations for Rare Disease Day and Myositis Awareness Month every year!
We will help you by providing the information, training materials, and letter templates to get you started. Our individual voices as patients of a rare disease may be small, but when we put them together we can roar!
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