Myositis Education Programs
Knowledge in Action
Education through Support
“Knowledge is Power.” This is something we at MSU believe in wholeheartedly. As part of our online support programs, such as our Facebook groups, Video Chats, and our MSU Network, we share resources that help our members to learn more about the rare disease, Myositis.
We also write our own articles. While we are not able to provide medical advice, we research topics and write articles in layman’s terms so our members can get a better understanding and further research on their own.
Self-advocacy is important and is a part of our focus.
Learning through experience
We learn a lot from the experiences of others. This is why we offer our members the opportunity to share their story publicly on our website and social networks.
There are many ways Myositis affects our lives while providing us with opportunities to grow in positive ways.
We hope you will share your story in hopes of helping others.
Learning through sharing
We have taken a lot of time and developed several items and ways you can share and spread education to others.
- We have created brochures and information cards you can order here through our shop section. Use these to hand out to friends and family members, or if you are hosting an event, use these as educational tools.
- Each page on our site offers you a way to share it on other social networking sites. Just click the button for the social network you wish to share a page, products, or article and simply follow the prompts to complete. It is really easy!
Education: In the future
Knowing there are few doctors who specialize in Myositis, we plan to create an educational platform for physicians, and other healthcare providers, to help them learn more about Myositis. This program will be led by a volunteer Board of medical advisors who understand and treat patients living with Myositis.
This same concept applies to patients and family members. We will create an online platform that will follow a detailed path, written in terms everyone can understand. This is an extension of our “Simply Put” series you can find under the “Explore Myositis” section of our site.
Also, in the near future, we will be holding a mailing campaign across the USA to provide educational materials to physicians offices that they can use to direct patients to us, where we can provide you with detailed support and information