Exercise is an important part of living with myositis and is currently the only “treatment” for those with inclusion body myositis. There are many factors to consider when beginning an exercise program especially when you have a muscle disease.
Not too long ago we, as patients, were told by many physicians to not exercise as it was thought we would be doing more damage. This advice has now been retracted and exercise is recommended for myositis patients.
What is the optimal program and how do you get started?
This question is important and one that needs great consideration. First, there is not any one approved exercise program for myositis. We have included some recommended programs with links below.
- Talk to your physician about beginning a physical therapy (PT) program and if needed, providing you with a referral to a physical therapist that has knowledge and experience working with myositis patients.
- If your PT does not have experience, talk to them about their willingness to research and learn prior to starting.
- Work together to create an individualized program and ask them to teach you the correct way to perform the exercises so you do not injure yourself.
- For those with polymyositis and dermatomyositis, ask about utilizing the Functional Index-2. You can download and print the Functional Index-2 and take it to them for reference.
- Talk to your PT about including aerobic exercise in your individualized program.
- Discuss your goals and what to expect with your PT.
- If you do not see improvement and/or you find you are in pain, stop and talk to your PT and physician.
Below, we have provided resources, research, and videos about Exercise and Myositis.
Prior to beginning an exercise program, consult with your physician to avoid injury.