Share your #MyositisLIFE
Share your patient and caregiver stories, short videos, photos, and memes. Your experiences with myositis help others facing the same challenges and can help researchers and scientists gain interest for studies. Check out #MyositisLIFE and register to become a contributing author.
It's our 4th Birthday!
Today we celebrate our 4th birthday as an all-volunteer, patient-centered 501(c)(3) nonprofit!
What started as a small Facebook support group years ago is now a full nonprofit and patient advocacy organization providing even more support options, education, financial assistance, advocacy, clinical trial matching, and access to research.
Review us on GreatNonprofits
If you love the work we are doing then tell the world! Stories about us from people like you will help us make an even bigger impact in our community.
GreatNonprofits – the #1 source of nonprofit stories and feedback – is honoring highly regarded nonprofits with their 2019 Top-Rated List.
Won’t you help us raise visibility for our work by posting a brief story of your experience with us? All content will be visible to potential donors and volunteers. It’s easy and only takes 2 minutes!
Review us on Facebook
Facebook is where we began in 2010 and where many of our members and supporters stood beside us and challenged us to be better.
You can leave a review of Myositis Support and Understanding Association (MSU) publicly on our Facebook page.
These reviews are important to help us better our day-to-day management plus these reviews can help other myositis patients and caregivers find the same patient-centered nonprofit organization that we hope has helped you.
Many of us living with myositis shop online. Aside from the obvious convenience, online shopping can be a necessity for those who require assistive devices, not to mention the pain and fatigue. Why not take your online shopping to another level and you earn donations for MSU.
Did you know you can earn donations for MSU?
We have joined with many online programs that donate a percentage of your purchases to MSU with no costs or fees. Many of these programs simply require you to sign up and add a safe browser extension. Then, when you shop online through a merchant who is part of the program, MSU receives a percentage of your purchases. Each program is different, so be sure to read the terms and privacy policies.
Shop Amazon Smile
The “Mac Daddy” of online shopping, but instead of using the Amazon.com link, use Smile.Amazon.com. Click the link, register Myositis Support and Understanding as your selected charity and continue to use Smile.Amazon.com for automatic contributions to MSU.
NOTE: The Amazon smartphone app does not allow for Smile purchases. You will need to go to your device’s browser and type in the Smile.Amazon.com.
If you are doing web searches, why not use Goodsearch who will give Myositis Support and Understanding a penny for each search you do.
Looking for deals and coupons? Register with GoodShop, who will send you a confirmation email, chose “select your cause” and search for Myositis Support and Understanding, then find and use coupons for just about anything.
Download the app for easy smartphone and tablet shopping!
Shop using iGive
Like with the popular Amazon Smile program, you can shop at 1000’s of popular stores when you register and download the iGive icon on your computer’s browser and get an app for your smartphone or tablet. Donation percentages through iGive.com are often higher than with Amazon Smile.
When you shop as you normally would and the store is an iGive store, Myositis Support and Understanding will receive a store donation based upon a percentage of your purchase.
Shop with WeCare.com
Your We-Care.com account unlocks donations and deals at over 2,700 merchants.
Shop and browse as you normally would, and we’ll let you know when you can earn a donation or save money on the brands you love!
Just sign up for an account, add the browser plugin, and then shop as you normally would.
Not only will merchants provide us with a percentage of your purchase (no fees to you or us), some actually donate up to 25% of your purchase amount to us.
One of the featured merchants we have selected is Medical Supply Depot!
Create a Fundraiser
Create your own fundraiser for MSU on Facebook and Crowdrise. And, hosting your own events, such as an Empower Walk or EmpoweRun 5K, can raise a lot of needed awareness.
We are an all-volunteer nonprofit. If you are passionate about helping those with myositis we could use your help. Check out some of the volunteer opportunities and apply.