May is Myositis Awareness Month!
MSU is a Forest.
Join us for educational webinars, video discussions, video support, Take Action opportunities, and so much more.
MSU helps myositis patients see the forest as well as the trees.
As you may know by the common idiom “you can’t see the forest for the trees,” it is often easy to lose your perspective when you are so focused on the “trees” or the details of a situation. Being diagnosed with myositis can be overwhelming. There is so much information that we tend to lose sight of the most important part – the “forest,” or in this case, the help and support MSU extends. MSU can help you see the forest as well as the trees.
Like a forest is made up of many trees, MSU is made up of many resources and guidance, creating the strong community it is.
Continuing from last year’s Take Action campaign, we are providing empowering opportunities for patients and caregivers so we can Take Action together!
Here are some things you can do right now:
- Create an MSU Myositis fundraiser, and create a team to make it even more fun! Visit https://secure.givelively.org/donate/myositis/myositis-awareness-month-may-2021 to get started.
- Commit to donating to help us continue providing the Myositis Patient Financial Assistance Program and supporting patient-centered research.
- Share our webinars, events, and education with others.
The MSU Anti-Fundraiser is back!
The Anti-fundraiser is back, and we are giving $50 away every day during May and a grand prize of $100 on May 30! Choose from two different gift card options! And what silly antics will Sage and Emily Filmore get into in their daily live videos this year?
This is only open to members. If you are not a member, register now to create your free membership. You will receive email updates and the link to sign up for the Anti-Fundraiser will be included. If you are in our support groups, see the post in the group. Good luck!
#MyositisLIFE – Your voice needs to be heard
One way to increase awareness of what it is like to live with myositis is to share your experiences living with myositis and telling your story! We invite you to share your story at MyositisLIFE.org. You can talk about living with symptoms, your medications or side effects, or your diagnosis journey. You can tell an inspirational story about when you found happiness in spite of myositis, really, anything you want to share about your journey (PG-13-rated of course!) will help others understand what it is like to live with myositis and increase awareness.
Share your experiences as an article, in photos, or video. Or, incorporate them all!
Visit MyositisLIFE.org, register for your account, and then get started!
Myositis Empower Walk
Stay tuned for updates about the upcoming 3rd Annual Myositis Empower Walk! Last year’s event was a huge success, raising over $18,000! It was held Saturday, September 19, 2020, in person at Discovery Park in Henderson, NV, and virtually, LIVE on Facebook! If you missed it, no worries, you can watch the recording.
The Landman Family created the Myositis Empower Walk in loving memory of Robert “Bob” Landman. This year, the Empower Walk introduced the virtual experience, with live participation. We went LIVE on Facebook to Discovery Park with the Landman’s and Shelby, who enthusiastically hosted the LIVE video.
The date will be announced as soon as possible to allow you to plan!
Upcoming Webinars & Events
Providing free easy-to-access and understand education about idiopathic inflammatory myopathies (myositis) and related topics, and now, COVID-19 is crucial. Additional events will be added shortly!
- September 23 @ 5:00 pm - 7:00 pm EDT
- September 24 @ 5:00 pm - 7:00 pm EDT
- September 25 @ 3:00 pm - 5:00 pm EDT
4th Annual A Day of Remembrance
The Fourth Annual “A Day of Remembrance” will be held in May 2022. If you have lost someone special with myositis, you can share their information and some photos we can include to publicly remember them during this video event.
The Third Annual “A Day of Remembrance” video event premiered Sunday, September 27, 2020. Each year we honor and remember those we have lost with myositis. And, this year, an urgent call to action to get involved.
The time for waiting is over.
NOW is the time to get involved and to take action.
Now is the time for you, as someone living with myositis, to raise your voice, to be heard, and to take action. Whether you participate in a survey, join a registry, enroll in a clinical trial, donate plasma, educate others, or take part in any number of other things, you can take charge today and contribute to accelerating myositis research and expanding outreach and advocacy.
Promoting Awareness of Myositis can be as simple as talking to your family members and friends about your experiences, ways they can help support patient-centered myositis nonprofits like MSU, and ways they can learn more and get involved.
There are other ways you can help make an even larger impact. Utilizing some of the ideas below can help spread the word to a larger audience. We are happy to help you in any way we can. Contact us and let us know what you need to make your awareness promotion and fundraising event a success.
Login or Register for your free MSU membership
Register for your free MSU membership and receive email newsletters and updates, and you will have your very own MSU Myositis Network account and profile with the ability to connect with other members. We do not share any personal information with third parties, nor do we spam.
Donate by check
If you would like to make your donation by mailing a check, please make your check payable to MSU and mail to:
9125 N. Old State Road,
Lincoln, DE 19960
If you would like to make the donation in honor of or in memory of your loved one, please include a note with the information.