May is Myositis Awareness Month!
MSU is a Forest.
Join us for educational webinars, video discussions, video support, Take Action opportunities, and so much more.
MSU helps myositis patients see the forest as well as the trees.
As you may know by the common idiom “you can’t see the forest for the trees,” it is often easy to lose your perspective when you are so focused on the “trees” or the details of a situation. Being diagnosed with myositis can be overwhelming. There is so much information that we tend to lose sight of the most important part – the “forest,” or in this case, the help and support MSU extends. MSU can help you see the forest as well as the trees.
Like a forest is made up of many trees, MSU is made up of many resources and guidance, creating the strong community it is.
Continuing from last year’s Take Action campaign, we will be providing empowering opportunities for patients and caregivers so we can Take Action together! Our plans are evolving and we will be updating this page more, very soon.
Here are some things you can do right now though:
- Start building your May MSU Myositis fundraiser, and create a team to make it even more fun! Visit https://secure.givelively.org/donate/myositis/myositis-awareness-month-may-2021 to get started.
- Commit to donating to help us continue providing the Myositis Patient Financial Assistance Program and supporting patient-centered research.
- Stay Tuned for upcoming announcements, empowering patient opportunities, and share them with your friends and family.
Myositis Apparel Campaigns!
May is Myositis Awareness Month and as we always do, we have launched the official MSU apparel campaigns that reflect the heart of MSU with messages of hope, love, and unity.
Our official theme, “MSU is a Forest” is based on the saying you have probably heard, “You can’t see the forest for the trees.” The diagnosis and information that Myositis patients receive can be so overwhelming that we tend to lose sight of the “forest” or the help and support available to us. MSU helps myositis patients see the forest as well as the trees. Like a forest that is made of many trees, MSU is made up of many resources, programs, members, and support opportunities. The team has created several apparel items to help you spread this awareness message about Myositis and the mission of MSU.
The #MYORainbow shirt represents the theme “Wear your colors in unity with MSU!” The #MYORainbow Campaign, which we intend to run again later as well, celebrates our differences through the expression of love and the embrace of unity! The rainbow has several meanings. To some, the rainbow symbolizes hope after a storm. To the LGBTQIA+ community, the rainbow symbolizes pride. To others, the rainbow symbolizes the breathtaking beauty of nature.
To MSU, the rainbow symbolizes all of this and the power of unity.
The #MYOHeartsandMinds shirt represents the message, “Muscle disease reveals one’s inner strength!” This design symbolizes the internal warrior strength that myositis brings out in all of us. Strength comes in many forms. It can be physical, mental, or emotional. We can even find collective strength in our community support for one another! MSU is proud of the strength our members show each and every day, even when our bodies don’t do what we want!
The #MYOForest shirt represents the message, “You are never alone. MSU is a forest of support for the MSU community.” MSU helps people with myositis see the forest. MSU is an all-volunteer team that knows the myositis experience and understands how important it is that people living with myositis never feel alone. We are proud to be a leader in community-based advocacy, and even more so in our conscious inclusion of people from all backgrounds.
Each of these designs reflects the heart, mind, and mission of MSU, the heart of the myositis community.
To purchase your Myositis Awareness apparel, you can start with the three (3) campaigns below:
#MYORainbow Link: https://www.customink.com/fundraising/myorainbow
#MYOHeartsandMinds Link: https://www.customink.com/fundraising/myoheartsandminds
#MYOForest Link: https://www.customink.com/fundraising/myoforest
In the coming days there will be additional purchase opportunities for some accessories! By purchasing MSU Myositis Apparel, you not only help spread awareness, but you join the collective effort in supporting MSU, its patient-centered programs, and its naturally diverse members.
Upcoming Webinars & Events
Providing free easy-to-access and understand education about the idiopathic inflammatory myopathies (myositis) and related topics, and now, COVID-19 is crucial. Register to join our free webinars. We have put a lot of heart into planning these timely and unique sessions. Additional events are being planned!
- April 17 @ 3:00 pm - 4:30 pm EDT |Recurring Event (See all)
An event every month that begins at 3:00 pm on day Third of the month, repeating until December 18, 2021
One event on September 20, 2020 at 3:00 pm
- April 24 @ 3:00 pm - 4:30 pm EDT |Recurring Event (See all)
An event every month that begins at 3:00 pm on day Last of the month, repeating until December 25, 2021
One event on December 26, 2021 at 3:00 pm
One event on February 28, 2021 at 3:00 pm
- April 28 @ 7:00 pm - 8:30 pm EDT |Recurring Event (See all)Held on the last Wednesday of each month
4th Annual A Day of Remembrance
The Fourth Annual “A Day of Remembrance” will be held in September. The final date to be announced soon. If you have lost someone special with myositis, you can share their information and some photos we can include to publicly remember them during this video event.
The Third Annual “A Day of Remembrance” video event premiered Sunday, September 27, 2020. Each year we honor and remember those we have lost with myositis. And, this year, an urgent call to action to get involved.
The time for waiting is over.
NOW is the time to get involved and to take action.
Now is the time for you, as someone living with myositis, to raise your voice, to be heard, and to take action. Whether you participate in a survey, join a registry, enroll in a clinical trial, donate plasma, educate others, or take part in any number of other things, you can take charge today and contribute to accelerating myositis research and expanding outreach and advocacy.
Promoting Awareness of Myositis can be as simple as talking to your family members and friends about your experiences, ways they can help support patient-centered myositis nonprofits like MSU, and ways they can learn more and get involved.
There are other ways you can help make an even larger impact. Utilizing some of the ideas below can help spread the word to a larger audience. We are happy to help you in any way we can. Contact us and let us know what you need to make your awareness promotion and fundraising event a success.
Login or Register for your free MSU membership
Register for your free MSU membership and receive email newsletters and updates, and you will have your very own MSU Myositis Network account and profile with the ability to connect with other members. We do not share any personal information with third parties, nor do we spam.
Creating your own MSU Myositis Fundraiser on Facebook is so easy! Visit the MSU public Facebook page fundraiser section, and under the header graphic/video, click the blue “Raise Money” button to get started.
Then, customize the image and wording to make it personal to you. Once ready, complete and start sharing. Share your fundraiser, with updates. often.
Create your Fundraiser
Have fun and educate your family members and friends by creating a Team Fundraiser!
To get started, click the button below. Choose from the options and get creative with your campaign. We are here if you have any questions. Email firstname.lastname@example.org Have fun with the fundraiser, but remember to share, share, share!
Donate by check
If you would like to make your donation by mailing a check, please make your check payable to MSU and mail to:
9125 N. Old State Road,
Lincoln, DE 19960
If you would like to make the donation in honor of or in memory of your loved one, please include a note with the information.