Myositis Awareness Month, May 2017

Myositis Awareness Month, May 2017

Theme: With Myositis sometimes Zebras have Spots!

Bookmark and come back to this page often. It will be updated frequently as we release our plans, announce events, and provide you with more resources.

The Zebra represents all rare diseases including Myositis

It's time to stock up on Myositis Awareness Gear!

Back by popular demand!

Order your shirts today or by April 29th at the latest

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017,  Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.

Through our public education and support of our members, plus financial assistance program, MSU helps patients deal with the rare “spots of the zebra” called Myositis.

Last year we reached over 187,000 people through our #MyositisLIFE theme campaign! That is one impressive number, so give yourself a pat on the back! May 2017 will bring even more awareness with your help!

Get your shirts today!

About the 2017 MSU Awareness Theme

MSU Awareness Theme, With Myositis, sometimes Zebras have spots

Purchase your MSU Awareness T-shirts and Hoodies by April 29th. Booster.com/myozebra2

This year Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments. Through our public education and support of our members, plus financial assistance program, MSU helps patients deal with the rare “spots of the zebra” called Myositis.

We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments. Through our public education and support of our members, plus financial assistance program, MSU helps patients deal with the rare “spots of the zebra” called Myositis.

Through our public education and support of our members, plus our financial assistance program, MSU helps patients deal with the rare “spots of the zebra” called Myositis.

Awareness through Education

There is always time for awareness through education. Embrace each opportunity to educate others by providing them with our information cards and brochures. You can order these in our online store to have on hand or order your very own custom MSU information cards that include your name and information along with an explanation of your type of myositis.

Other ways you can help educate include sharing resources from our website, interacting with and sharing our social networking sites with others, writing your own personal myositis or caregiver story to be featured on our website’s blog, hosting your own fundraiser for MSU, getting involved with MSU, and so many other creative ways.

Awareness and Education will help others to better understand our complicated, rare disease. So, when you see an opportunity to educate, we hope you will jump in and take it!

We will be adding more information and resources to this page as we move closer to May, Myositis Awareness Month. 

We are looking for you to put a face on Myositis!

WHO’S IN? We are looking for YOU, patients and caregivers to put faces to myositis!

Submit your one paragraph summary of your encounter with the rarity of myositis to build a picture of our theme “With Myositis sometimes Zebras have Spots.” We want to hear about an interesting symptom, a difficult part of your diagnosis, an interesting part of your treatment plan, some novel “life hack” you’ve made to cope with living with myositis, etc. We will compile these stories and your photos into an interactive graphic of a zebra (you will be a spot on the zebra!) on our website to show others how different myositis is for each patient.

If we get more submissions than the graphic will hold, entries will be randomly selected for use and may be edited for appropriateness and clarity; only complete submissions will be considered (photo and the short paragraph. If yours is not selected for the Zebra graphic we may use it for other promotional purposes.

Email your submission (name, photo, and paragraph) to Info@understandingmyositis.org – By doing so, this grants Myositis Support and Understanding Association your explicit permission to use your likeness and story in promotional materials. Entries due by May 1st, 2017.

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.

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Hi, this may be interesting to you: Myositis Awareness! The link is included below: https://understandingmyositis.org/awareness/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.