Join us in May for Myositis Awareness Month!
Details for 2024 will be coming in the next few months.
Don't wait until May . . .
#MyositisLIFE – Your voice needs to be heard
One way to increase awareness of what it is like to live with myositis is to share your experiences living with myositis and tell your story! We invite you to share your story at MyositisLIFE.org. You can talk about living with symptoms, your medications or side effects, or your diagnosis journey. You can tell an inspirational story about when you found happiness in spite of myositis, really, anything you want to share about your journey will help others understand what it is like to live with myositis and increase awareness.
Share your experiences in an article, in photos, or in a video. Or, incorporate them all!
Visit MyositisLIFE.org, register for your account, and then get started!
Upcoming Webinars & Events
Providing free easy-to-access and understand education about idiopathic inflammatory myopathies (myositis) and related topics, this year with a focus on bringing forth the patient and caregiver voices.
- March 3 @ 7:00 pm - 9:00 pm EST
- March 4 @ 7:00 pm - 9:00 pm EST
- March 4 @ 7:00 pm - 9:00 pm EST
- March 6 @ 6:00 pm - 8:00 pm EST
- March 7 @ 1:00 pm - 2:30 pm EST
The time for waiting is over.
NOW is the time to get involved and to take action.
Now is the time for you, as someone living with myositis, to raise your voice, to be heard, and to take action. Whether you participate in a survey, join a registry, enroll in a clinical trial, donate plasma, educate others, or take part in any number of other things, you can take charge today and contribute to accelerating myositis research and expanding outreach and advocacy.
Promoting Awareness of Myositis can be as simple as talking to your family members and friends about your experiences, ways they can help support patient-centered myositis nonprofits like MSU, and ways they can learn more and get involved.
There are other ways you can help make an even larger impact. Utilizing some of the ideas below can help spread the word to a larger audience. We are happy to help you in any way we can. Contact us and let us know what you need to make your awareness promotion and fundraising event a success.
Login or Register for your free MSU membership
Register for your free MSU membership and receive email newsletters and updates, and you will have your very own MSU Myositis Network account and profile with the ability to connect with other members. We do not share any personal information with third parties, nor do we spam.
Creating your own MSU Myositis Fundraiser on Facebook is so easy! Visit the MSU public Facebook page fundraiser section, and under the header graphic/video, click the blue “Raise Money” button to get started.
Then, customize the image and wording to make it personal to you. Once ready, complete and start sharing. Share your fundraiser, with updates. often.
Create your MSU Fundraiser
Not on Facebook? Have fun and educate your family members and friends with a customized fundraiser on our new platform!
To get started, click the button below. Choose from the options and get creative with your campaign. We are here if you have any questions. Email email@example.com Have fun with the fundraiser, but remember to share, share, share!
Make an online donation
As a nonprofit, we rely on donations for the work we do.
We hope you will make a contribution. We appreciate your support!
Donate by check
If you would like to make your donation by mailing a check, please make your check payable to MSU and mail to:
9125 N. Old State Road,
Lincoln, DE 19960
If you would like to make the donation in honor of or in memory of your loved one, please include a note with the information.