The MSU pain article: “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies” has been published in Rheumatology and MSU is proud to make the paper available to you at no cost.

Get the full paper
Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies
Myositis pain is real but poorly understood

Pain is a symptom of myositis

Bringing myositis pain to the forefront

Pain continues to be a misunderstood symptom of myositis. Although many of the experts dealing with this issue acknowledge that myositis pain is real, there are many clinicians that still believe pain is not associated, which leads to unnecessary suffering.

Studies on pain and myositis are very limited. We are working to help remedy this in hopes of better understanding and treatment of the pain associated with myositis.

September is Pain Awareness Month

Share your experiences with myositis pain

September is Pain Awareness Month. Myositis pain can often be a contentious subject among patients and their physicians. In years past, medical students were told myositis does not cause pain. This is no longer the case. Myositis can and does cause pain, and pain is sometimes the very first symptom.

To help physicians, researchers, family members, friends, and fellow myositis patients better understand, share your experiences with myositis pain publicly using our new #MyositisLIFE program and website.

We strongly urge you to share your experiences to help us continue our work in furthering the research of myositis pain. Start today at

Share your story
September is Pain Awareness Month

Myositis Pain and Opioids Survey Update

Pilot survey ended June 4, 2019

The pain paper has been published in Rheumatology! The Pain with Myositis is Real!

We wanted to share a little bit of news. We aren’t able to give many specifics yet, but thanks to our pilot survey with close to 500 responses, MSU is teaming up with several known myositis researchers to conduct a more formal study about myositis pain and the effects of the 2016 CDC regulations on opioids. We will let you know more as it becomes available, but for now, we want to thank YOU!

If you didn’t get to take the initial survey, don’t worry. You will have the opportunity to have your voice heard on this topic soon. Be sure to register for your free MSU membership at to stay updated via email and to continue getting involved to make a difference.

We couldn’t do anything we do without your participation, support, attention, and of course, your donations and sharing our fundraising efforts! You are the reason why our nonprofit organization was founded; by patients for patients. You matter!

© 2024 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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