Meet our board of directors behind our all volunteer-managed, patient-centered, nonprofit, Myositis Support and Understanding (MSU).
Jerry Williams, Founder and President
Gerald “Jerry” Williams, diagnosed with Polymyositis in 2003, founded MSU originally as a Facebook support group titled, “Polymyowhat: Understanding Myositis,” in 2010. Jerry is the Founder and President of MSU and also serves as the Executive Director. He is passionate about helping others living with this rare disease.
Penny Bundy, Treasurer
Penny Bundy was diagnosed with Inclusion Body Myositis in 2015, after 7 years of experiencing symptoms of the disease with no clear diagnosis. In researching the disease, she found and joined an online MSU support group. It was because of Penny’s positive experience with this group that she was excited about joining the MSU team.
Peggy Albertson, Board Member
Peggy Albertson is a sister, mother, grandmother and wife. Her husband Steve has IBM, and it is the progression of his symptoms that brought Peggy to Myositis Support and Understanding.
Julie Posey, Board Member
More information about Julie Posey is coming soon.
Lynn Wilson, Board Member
Lynn comes to the Board with 38 years experience in the petroleum industry working as a petroleum engineer focusing on oil field research, operations training, project management and organizational change. Her career has taken her all over the world, flying over 1.5 million miles to 6 continents, including a year assignment in Hong Kong.
Jim Doiron, Board Member
James “Jim” Doiron was diagnosed with Necrotizing Autoimmune Myopathy (NAM) associated with the Anti-SRP antibody in 2017. In less than two months, he went from a do-it-yourself master bathroom remodeling project to being unable to lift his 4-year-old grand niece. In June 2018, Jim learned that he has steroid-induced cataracts.
Caitlin Ray, Board Member
Caitlin Ray is currently PhD Candidate at the University of Louisville Rhetoric and Composition program, where she also teaches writing and communications in the English department, the Health Sciences Campus, and the College of Business. She graduated with a BA in English and Theatre from Hamline University in St. Paul, MN, and worked as an actor in the Twin Cities for several years. When she was 22 years old, she was diagnosed with dermatomyositis.
Beverly Boyarsky, Board Member
After being at the top of her public relations career for almost 25 years, Beverly Boyarsky’s life as she knew it came to a screeching halt in 2004. Dozens of specialized doctor visits and extensive laboratory testing revealed Polymyositis, a rare incurable muscle disease.
Emily A. Filmore, Advisor to the Board
Emily holds a BA in Psychology from Westminster College in Fulton, MO and a Juris Doctor from St. Louis University School of Law, but her career path has been as winding and unpredictable as the Juvenile Dermatomyositis that has gripped her body for 20 years. Combining humor and spirituality, Emily has found a way to make peace with her chronic disease, even celebrating it, grateful for the lessons and blessings it has brought into her life.
Sandy Block, Board Member Emeritus
Sandy is a founding member of MSU, former Board Vice President and senior administrator of the MSU groups and public information page. Her interest and background in research and writing and as her parents’ healthcare advocate have helped her through her cope with PM and treatment-related issues. She is passionate about helping others become knowledgeable about their health issues and empowered to become their own healthcare advocate.
Join our email updates and newsletter
Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register