Chronic Pain Resources

Learn more about chronic pain

Ways to cope, help, and find treatment for chronic pain

While not everyone with Myositis will experience chronic pain, it is estimated that roughly 40% do. A physician at Johns Hopkins Myositis Center told us that 50% of their patients present with muscle pain.

Some may experience chronic pain in association with overlap diseases such as Lupus, Sjogren’s, and/or Scleroderma. It can be hard to differentiate which illness is causing the pain, especially if you have Myositis and Fibromyalgia.

An important factor to note is that when treating pain, the goal is usually not to eliminate pain altogether unless possible.  However, treatments can minimize the amount of pain patients experience.

For those with chronic pain, we have provided some helpful resources below.

Estimated 40% of Myositis patients live with pain

"It is estimated that 40% of people with Myositis experience chronic muscle pain"

Chronic Pain Resources

Below you will find some helpful tips and articles on chronic pain

Chronic Pain Foundations & Organizations

Below are some chronic pain organizations and links to their respective web site’s

Pain is like “A Car With Four Flat Tires”

Patient Education about Pain

American Academy of Pain Medicine (AAPM) Past President, Perry G. Fine, MD shares information on pain and pain treatments in a 21-part video series.

The series covers a variety of topics on managing pain, but should not be used as medical advice.

Visit AAPM to watchpain video series

Treatments for Pain

Chronic pain is usually treated by a Pain Management specialist who has specific knowledge and understanding about the complex ways pain affects our body and mind.

There are many medications available to treat pain including: NSAID’s, opioids, muscle relaxants, and others.

Aside from medications, there are other options your doctor may consider. These may include acupuncture, electrical stimulation, psychotherapy, relaxation and meditation therapy, biofeedback, and behavior modification.

2006 Voices of Chronic Pain Survey


  • 77% Reported feeling depressed

  • 59% Reported impact on enjoyment of life

  • 86% Reported inability to sleep well

  • 51% Reported feeling no control over pain

  • 70% Reported trouble concentrating

  • 74% Reported energy level affected by pain

Why people stop taking narcotics

Narcotics are sometimes the only effective way to manage chronic pain. However, the severe constipation they cause may be a reason patients stop taking them.

Learn more about opioid induced constipation by watching the video.

Also, there are new medications on the market that can help reduce the constipation associated with narcotic medications.

Opioid Induced Constipation

About Chronic Pain - Discovery Channel, Pain Matters

“100 million American adults live with chronic pain. That’s more than cancer, diabetes, and heart disease combined. According to the Institute of Medicine, the high prevalence of chronic pain suggests that the condition is not being adequately managed. Undertreatment of chronic pain creates large costs to the healthcare system and the U.S. economy; we spend more than $560 billion in the U.S. each year on chronic pain-related healthcare costs. Moreover, chronic pain can carry significant physical and emotional burdens.” – From Discovery Channel, Pain Matters

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This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: Chronic Pain Resources! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.