At Myositis Support and Understanding, we understand and appreciate the important role that you as a caregiver, care partner, or spouse play in helping to improve your loved one’s quality of life with the rare disease myositis. Care partners are the rock and foundation for any patient living with myositis. Without you, they may feel alone, isolated, and unsafe, and may not be able to do the things they enjoy.
Care partners are instrumental in helping to manage their loved one’s health by going to doctor visits and asking questions, taking notes, and explaining things that the patient may forget. Care partners are an integral part of the healthcare team and we work to provide support and resources to help you succeed and stay well.
Share your myositis caregiving experiences
Myositis caregivers and care partners each have unique experiences to share that can help educate and inform others going through similar experiences. Visit our new #MyositisLIFE website and start sharing today.
Each form of myositis is different and brings unique challenges. Whether they are specific adaptations you have made in your home or daily life to help make things easier or how you have created a journal or schedule that helps keep your better organized and prepared for unexpected circumstances. Share your unique story with us so we can share it publicly.