Raynaud’s Phenomenon

Simply Put


Showing the color changes that occur with Raynaud’s

Myositis is sometimes accompanied by other conditions, one of those being Raynaud’s Phenomenon (alternately called a disease or syndrome). When Raynaud’s is present in patients with another underlying condition, it is considered “Secondary Raynaud’s,” while others without any other underlying condition can experience “Primary Raynaud’s.”

People with Raynaud’s may have extreme reactions in their hands, fingertips, nose, toes, and ears when a spasm of the blood vessels in these areas occur. Sometimes the cause is exposure to cold temperatures or even stress.

People with Raynaud’s experience numbness, tingling, prickling, and/or painful sensations along with color changes of the skin. This is due to constricting blood vessels (thought to be overactive nerves) that keep the blood from reaching those parts of the body.

Left unaddressed, Raynaud’s can lead to problems with circulation and skin ulcers, some of which can lead to gangrene. Many people with Raynaud’s are able to use self-care strategies to help alleviate the symptoms.

Self-care includes:

  • Wearing gloves (and socks) when in cold weather/areas
  • Wearing gloves when handling cold or frozen items
  • Running warm (not hot) water over affected areas areas affected by Raynaud’s
  • Rubbing hands together, waving arms around in “windmill” fashion to restore blood flow
  • Dressing in layers with the ability to wrap your hands more and further insulate your feet if necessary
  • Practice deep breathing to reduce stress
  • Remove yourself from stressful situations
  • Check out products that have been tested by Raynaud’s Association

For more severe cases, which lead to tissue damage, there are medical interventions in the form of medications, surgery to sever nerves, and botox injections. These are serious decisions and should be discussed at length with your doctor, weighing out the risks of complications versus the possible benefits.

As with all complications of Myositis, if you suspect you may have Raynaud’s please consult your doctor immediately. Accurate testing and early diagnosis is key to proper management of this and all components of autoimmune diseases.

Information for this article was gathered from the following sources:




Simply Put

“Simply Put” is a service of Myositis Support and Understanding, to provide overviews of Myositis-related medical and scientific information in understandable language.

MSU volunteers, who have no medical background, read and analyze often-complicated medical information and present it in more simplified terms so that readers have a starting point for further investigation and consultation with healthcare providers. The information provided is not meant to be medical advice of any type.

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