Myositis Support and Understanding Social Networks
Subscribe to and follow our social networking sites to learn more and become involved with MSU. Share updates about myositis and MSU with your friends and family to help promote education and understanding, awareness, reserach, and support.
Social networking is one of the BEST ways you can help others to understand myositis and help us to promote awareness.
Promoting Myositis Education & Awareness
Helpful tips on spreading the word about myositis and MSU
Help with Social Networks: Basic to Advanced
To set up and share your videos on YouTube, there are a few things that need to be set.
1. If you don’t have an account, visit YouTube.com and create an account.
2. Or, if you have an account, login and click Upload in the top right corner and choose Public. (In order to share your video it must be marked Public)
3. In the settings box, be sure to add these:
- Give your video a descriptive name using keywords (i.e. Myositis, Rare Disease)
- Add a description to your video that will help others to find it. Again, keywords are important.
- If you didn’t do this step above, set the video to Public. If it is set to anything other than Public, we will not be able to share the video.
4. Once your video is uploaded, you can use the Share feature to get the link and then you can post it to Facebook or any other networks you are on. Always include #myositis in the post if your video is related. We can all track your myositis videos by clicking on that hashtag/keyword.
Use Hashtags to promote Myositis conversations
Social networking is an effective and fun way to promote Myositis awareness, however, many do not understand how to use – or the importance of – hashtags.
A hashtag is simply a keyword which starts with a pound sign (#) and is related to the content of your post. The ultimate goal is to create a conversation around your topic or keyword. For example, this article talks about hashtags, therefore a hashtag which would focus on the subject of hashtags would look like this: #Hashtags.
For optimal performance, a hashtag should be one word. If you wish to use a key phrase, just combine the words and remove the spaces, like this: #LoveHashtags or #DachshundPuppies. Using both upper and lower case letters is acceptable for hashtag use such as #lovehashtags and #LoveHashtags, which are considered the same, and both will lead to the same topic/conversation list. Using two separate words such as #myositis #awareness is not the same as using a key phrase such as #MyositisAwareness. The first, #myositis, will provide posts under the keyword “myositis” while the second, #awareness, will provide posts related to the keyword “awareness,” but not specifically Myositis awareness.
