Myositis is an incurable rare disease lacking FDA approved therapies. It spans many specialties, utilizes many off-label medications and therapies, but it can be a challenge to coordinate and afford all of the necessary services.
Rare Disease Day 2020 is an opportunity for us to work together in the rare disease community to focus on patient-led research initiatives and promote the sharing of research data more freely.
Rare Disease Day 2020 starts in . . .
Rare Disease Day is February 29, 2020
We will be updating this page with more details and more ways you can help as we move closer to Rare Disease Day.
THRIVE FOR RARE
As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone. We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org