Myositis is an incurable rare disease lacking FDA approved therapies. It spans many specialties, utilizes many off-label medications and therapies, but it can be a challenge to coordinate and afford all of the necessary services.
Rare Disease Day 2020 is an opportunity for us to work together in the rare disease community to focus on patient-led research initiatives and promote the sharing of research data more freely.
We will be announcing our plans for Rare Disease Day in mid-January 2020.
SAVE THE DATE
Rare Disease Day is Saturday, February 29, 2020, and we hope you will save the date and join us online starting at 3 PM EST.
Event details are coming soon.
We will be updating this page with more details and more ways you can help as we move closer to Rare Disease Day.
Rare Disease Day 2020 starts in . . .
Prepare and Get Involved: Rare Disease Day 2020
THRIVE FOR RARE
As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone. We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org