Caregiving: Defining Family

Caregivers defining family

Watch the presentation and learn more about defining what “family” is in caregiving and some wonderful insights about caregiving techniques. You will also find statistics, learn more about “new” family dynamics such as LGBT families and more.

What has helped Caregivers?

  • Information and Support Groups
  • Respite Services
  • Skill building interventions
  • Help of secondary caregivers
  • Assistance navigating health care system
  • Assistance interacting with health care providers
  • Open communication with the patient, family and healthcare team

Caregiver Support for Myositis

We have a closed Facebook group for Caregivers, Family Members and Friends of someone with myositis (Polymyositis, Dermatomyositis, Inclusion Body Myositis and Juvenile Myositis/Dermatomyositis).

 

http://www.facebook.com/groups/myositisfamilyandfriends

 

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.

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Hi, this may be interesting to you: Caregiving: Defining Family! The link is included below: https://understandingmyositis.org/caregiving-defining-family/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.