Caregivers defining family

Watch the presentation and learn more about defining what “family” is in caregiving and some wonderful insights about caregiving techniques. You will also find statistics, learn more about “new” family dynamics such as LGBT families and more.

What has helped Caregivers?

  • Information and Support Groups
  • Respite Services
  • Skill building interventions
  • Help of secondary caregivers
  • Assistance navigating health care system
  • Assistance interacting with health care providers
  • Open communication with the patient, family and healthcare team

Caregiver Support for Myositis

We have a closed Facebook group for Caregivers, Family Members and Friends of someone with myositis (Polymyositis, Dermatomyositis, Inclusion Body Myositis and Juvenile Myositis/Dermatomyositis).


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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Myositis Support

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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Hi, this may be interesting to you: Caregiving: Defining Family! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.