Caregivers defining family

Watch the presentation and learn more about defining what “family” is in caregiving and some wonderful insights about caregiving techniques. You will also find statistics, learn more about “new” family dynamics such as LGBT families and more.

What has helped Caregivers?

  • Information and Support Groups
  • Respite Services
  • Skill building interventions
  • Help of secondary caregivers
  • Assistance navigating health care system
  • Assistance interacting with health care providers
  • Open communication with the patient, family and healthcare team

Caregiver Support for Myositis

We have a closed Facebook group for Caregivers, Family Members and Friends of someone with myositis (Polymyositis, Dermatomyositis, Inclusion Body Myositis and Juvenile Myositis/Dermatomyositis).

 

http://www.facebook.com/groups/myositisfamilyandfriends

 

Tags:

Author:

Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

0 Comments

Leave a reply

Your email address will not be published. Required fields are marked *

*

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Log in with your credentials

or    

Forgot your details?

Create Account

Send this to a friend