Caregivers defining family

Watch the presentation and learn more about defining what “family” is in caregiving and some wonderful insights about caregiving techniques. You will also find statistics, learn more about “new” family dynamics such as LGBT families and more.

What has helped Caregivers?

  • Information and Support Groups
  • Respite Services
  • Skill building interventions
  • Help of secondary caregivers
  • Assistance navigating health care system
  • Assistance interacting with health care providers
  • Open communication with the patient, family and healthcare team

Caregiver Support for Myositis

We have a closed Facebook group for Caregivers, Family Members and Friends of someone with myositis (Polymyositis, Dermatomyositis, Inclusion Body Myositis and Juvenile Myositis/Dermatomyositis).




Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support


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© 2021 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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