This group has been a lifeline to me in the midst of so much uncertainty. I spent months muddling through with numerous doctors, stumbling toward a diagnosis. It’s only been in connecting with this group that I’ve felt a sense of hope. These are my mentors, the people who have walked the path before me and walk with me. I can receive and give encouragement and learn so much more than my doctors can tell me. With this group I have a place where I can complain, ask questions and be understood, and know that I am not alone.
Not alone anymore
Author: Jerry Williams
Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more. (NOTE: Some things are posted under Jerry Williams but he is not the true author. This is because he manages the website.)
View more information: Jerry Williams
-
Compassion and Assistance after Hurricane Ian
Myositis Support,
Hello, my name is Sandra and I live in Florida. I went through a difficult time after hurricane Ian....
-
My home away from home
Jerry Williams,
Myositis is such a strange and devastating disease. It affects people of different ages, areas of the body and...
-
A lifeline in my darkest days
Jerry Williams,
I am a terribly private person, who is not very good at expressing myself, so social media is not...
-
Hope
Jerry Williams,
Hope when hope was lost, laughter when there were only tears, company when no one is in the room...
-
True inspiration
Jerry Williams,
This group has helped me thru some dark days.. The people care not only about themselves but everyone else....
-
I support the MSU Mission
Jerry Williams,
As a myositis researcher, I support MSU’s mission and their excellent work!!!
-
A Positive group
Jerry Williams,
I may not have energy to post everyday but I love reading other’s posts and being a part of...
-
Understanding
Jerry Williams,
I love this group because no one can understand what we are going through except us. When we write...