This group has been a lifeline to me in the midst of so much uncertainty. I spent months muddling through with numerous doctors, stumbling toward a diagnosis. It’s only been in connecting with this group that I’ve felt a sense of hope. These are my mentors, the people who have walked the path before me and walk with me. I can receive and give encouragement and learn so much more than my doctors can tell me. With this group I have a place where I can complain, ask questions and be understood, and know that I am not alone.
Author: Jerry Williams
Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more. (NOTE: Some things are posted under Jerry Williams but he is not the true author. This is because he manages the website.)
View more information: Jerry Williams
- Join the Yale Inclusion Body Myositis Registry April 15, 2019
- An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video March 22, 2019
- The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort March 19, 2019