I love this group because no one can understand what we are going through except us. When we write negative things, someone out there can relate and it makes the reader know they are not alone. When we write positive things, it gives reader hope. The fact it is online 24/7 and we can connect from all over on our time, in the comfort of our home is priceless. No wasting energy to connect with others. You can sit in your bed and be part of a supportive group. I love this group and have healed a lot through others stories.
Author: Jerry Williams
Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more. (NOTE: Some things are posted under Jerry Williams but he is not the true author. This is because he manages the website.)
View more information: Jerry Williams
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April 21 @ 12:00 pm - 1:00 pm EDT
April 27 @ 5:00 pm - 7:00 pm EDT
Polymyositis: the evolution of this diagnosis in light of recent research by Dr. Lisa-Christopher-StineMay 1 @ 2:00 pm - 3:00 pm EDT
May 9 @ 5:00 pm - 6:00 pm EDT
Myositis Support and Understanding Association Partners with Antidote Technologies for Clinical Trial Matching April 3, 2018
Myositis Support and Understanding Association (MSU), a...
When our precious children lash out due to parental chronic illness March 25, 2018
Living with, and trying to overcome, autoimmune disease...