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After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship

In this webinar, we first introduce you to Dr. Salman Bhai, a physician-researcher who is on a mission to ”help change how myositis is diagnosed, treated, and managed.” Dr. Bhai is an Assistant Professor in the Department of Neurology and Neurotherapeutics at the University of Texas Southwestern Medical Center and Faculty Member at the Institute of Exercise and Environmental Medicine (IEEM) at Texas Health Presbyterian Hospital Dallas.

Dr. Bhai discusses best practices related to myositis care and empowers you to seek the care you deserve. He shares his checklist for multidisciplinary care, shares ways you can guide research efforts to help understand and cure myositis, and answers questions submitted by patients and caregivers in the myositis community.

Dr. Bhai’s checklist for your care

    • Multidisciplinary care: psychological support, physicians and nurses, speech and swallow, physical therapy, occupational therapy, social work, nutrition, respiratory therapy, pain management, advocacy groups, self-care, caregiver support.

Ways you can help guide research

  • Biobank for basic and translational science, Epidemiologic efforts, Clinical trials, Focus groups.
Clinical Trials discussed during this webinar:

All studies below are recruiting as of 11/17/2020.

The phase 2 clinical trial of KZR-616 for PM and DM, Presidio by Kezar Life Sciences

The phase 2 clinical trial of Zilupoplan for IMNM, UCB (previously Ra Pharma)

NIH/NIEHS/EAG Studies, including the trial of IV Sodium Thiosulfate for Calcinosis – call 800-411-1222.

Download the Slides

View the slides to follow along and to access the resources provided during the webinar.

Myositis Patients and Families Come First: Introducing Dr. Salman Bhai

Dr. Bhai is working together with MSU, collaborating on myositis patient-centered research, patient education, grants, and improving care by listening to patients and caregivers.

Dr. Bhai is eager to meet the patients and caregivers in the myositis community. In the meantime, we posed several questions to him to help you get to know him and learn about his vision. Read the article to learn more.

About Salman Bhai, M.D.

Dr. Salman Bhai, Neurology, UT Southwestern

Dr. Salman Bhai is an Assistant Professor in the Department of Neurology and Neurotherapeutics at the University of Texas Southwestern Medical Center and Faculty Member at the Institute of Exercise and Environmental Medicine (IEEM) at Texas Health Presbyterian Hospital Dallas. He earned his B.S. in mathematics at Duke University and his M.D. from Harvard Medical School, where he earned multiple research grants. He completed his internship, neurology residency, and neuromuscular fellowship at Harvard: internship at Brigham and Women’s Hospital and residency and fellowship in a joint program between Massachusetts General Hospital and Brigham and Women’s Hospital. He is grateful for the unique neuromuscular mentorship, training under several neuromuscular experts including Drs. Anthony Amato and Steven Greenberg (Brigham and Women’s Hospital) and Drs. William David, Amanda Guidon, and Reza Seyedsadjadi (Massachusetts General Hospital), amongst several others.

Dr. Bhai specializes in the evaluation, diagnosis, and treatment of neuromuscular disorders. He specifically focuses on patients with inflammatory and metabolic myopathies as well as those with immune checkpoint inhibitor complications.

His research focuses on understanding how muscles communicate with other organ systems, particularly when muscle is inflamed, like in myositis. The goal of his research is to better understand, diagnose, and treat patients with myositis. This will be achieved through exercise and muscle physiology studies of myositis patients by analyzing biospecimens for molecular perturbations. He also will offer clinical trials for myositis patients.

Dr. Bhai is dedicated to helping patients and their families understand and navigate difficult conditions by providing world-class clinical care.

Dr. Bhai’s Bio and Contact information is available at https://profiles.utsouthwestern.edu/profile/83540/salman-bhai.html.

University of Texas Southwestern Medical Center (UTSW) Research Approach

Institute of Exercise and Environmental Medicine  (IEEM) Research Approach

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

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