Knowledge is power

Do you care for someone with Myositis? A spouse, parent, child or friend? Myositis is a lifelong battle full of ups and downs; often with stretches of good health which can be cut short by flare-ups (also known as “flares”) of the disease. The uncertainty of the disease can affect your life just as much as it does the life of the person with the disease. Learning all that you can about Myositis is beneficial to both you and the patient.

LEARNING ABOUT MYOSITIS

Information is a powerful tool. It can help you understand the symptoms, restrictions and needs of a patient and help you communicate better with doctors. Learn as much as you can from trustworthy sources. While the internet is a great tool, always check your sources to make sure the information is accurate and up-to-date. Here are some ways to improve your knowledge:

WEBSITES:

IN-PERSON SUPPORT GROUPS:

Both TMA and MDA offer in-person support groups where both the patient and caregiver is welcomed:

ONLINE SUPPORT GROUPS:

How has knowledge of the disease helped you as a caregiver?

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

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