Knowledge is power

Do you care for someone with Myositis? A spouse, parent, child or friend? Myositis is a lifelong battle full of ups and downs; often with stretches of good health which can be cut short by flare-ups (also known as “flares”) of the disease. The uncertainty of the disease can affect your life just as much as it does the life of the person with the disease. Learning all that you can about Myositis is beneficial to both you and the patient.


Information is a powerful tool. It can help you understand the symptoms, restrictions and needs of a patient and help you communicate better with doctors. Learn as much as you can from trustworthy sources. While the internet is a great tool, always check your sources to make sure the information is accurate and up-to-date. Here are some ways to improve your knowledge:



Both TMA and MDA offer in-person support groups where both the patient and caregiver is welcomed:


How has knowledge of the disease helped you as a caregiver?



Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are key to helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage our fast growing organization.

View more information: Myositis Support

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PIONEER, Idera clinical trial for dermatomyositis

PIONEER, Idera clinical trial for dermatomyositis


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Hi, this may be interesting to you: Caring for Someone with Myositis! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.