For patients, caregivers, family and friends, watch Part 5 of our popular Exercise In Place series with the OT/PT...
Tag Archive for: caregivers
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
Spend your Turkey Day with us and enjoy some fun and games, and lots of laughter! Register to get...
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about...
The Power of Forgiveness: How it can help care partners

Learn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at...
In this webinar, we’ll learn how not forgiving others negatively impacts us, not the person we don’t want to...
Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Paul Kidwell Presents Five Stories at the Heart of Caregiving

Paul shares five important elements at the Heart of Caregiving from his own personal experience and story as a...
In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
Myositis patients have special needs when preparing for natural disasters. Learn more and be prepared with a plan
A touching personal story from the daugher of a myositis patient remembering that her Dad, her longtime hero, ...
MSU is a 501(c)(3) non-profit organization founded on July 30, 2015, for patients living with, and for loved ones...
Helping family members understand the merry-go-round of chronic illness from a spouse’s perspective

A recurring topic of conversation in health support groups is the difficulty spouses, partners, parents, siblings, children, or friends...
Myositis Support and Understanding recently spoke with Rich and Carla Stevenson, David Quay, and Barry Pace about life with...
12 things your chronically ill friend wants you to know about feeling left behind, and what you can do to help!

One of the worst things someone with chronic illness can do is make a mistake in the balance between...
Myositis Awareness Day And My Husband’s Diagnosis by Guest Author, Barbara Naturally Speaking It’s been almost three years since...
Hi, I’m Sage and I am nine years old. My mommy has dermatomyositis. I have a list about the...