In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring...
Yoga and meditation offer a wealth of opportunities to seniors and caregivers. While both practices might appear complex on...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
Myositis patients have special needs when preparing for natural disasters. Learn more and be prepared with a plan
A touching personal story from the daugher of a myositis patient remembering that her Dad, her longtime hero, ...
MSU is a 501(c)(3) non-profit organization founded on July 30, 2015, for patients living with, and for loved ones...
Helping family members understand the merry-go-round of chronic illness from a spouse’s perspective
, , Caregiver
A recurring topic of conversation in health support groups is the difficulty spouses, partners, parents, siblings, children, or friends...
Myositis Support and Understanding recently spoke with Rich and Carla Stevenson, David Quay, and Barry Pace about life with...
12 things your chronically ill friend wants you to know about feeling left behind, and what you can do to help!
, , Hacks, Myositis
One of the worst things someone with chronic illness can do is make a mistake in the balance between...
5 Week Road trip to Yellowstone with IBM Adventurers by guest author Camille Lesoine Ray and I are back...
Myositis Awareness Day And My Husband’s Diagnosis by Guest Author, Barbara Naturally Speaking It’s been almost three years since...
Hi, I’m Sage and I am nine years old. My mommy has dermatomyositis. I have a list about the...
Today Jerry Williams, founder and president of MSU, is interviewing our very own, Emily Filmore. She is an MSU...
Still Alive and Waiting for the Call Parts Five and Six of a series submitted by Anne Tiller While...
Lung Transplant, Waiting for the call Part Four of a series submitted by Anne Tiller We finally received the...
Lung Transplant, Fundraising Tips Part Three of a series submitted by Anne Tiller What a difference a few weeks...
The week after all the double lung transplant evaluation testing is a long one. Our hospital meets on Tuesdays,...
A Week In Lung Pre-Transplant Evaluation Land Part One of a series submitted by Anne Tiller My husband has...
Care partners, share your rare disease story In observance of the upcoming Rare Disease Day 2015 theme, “Living with...
Myositis Support and Understanding supports Caregivers and offers several online support groups for Caregivers, Family and Friends. We also...
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Upcoming Events
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Register to join Orthotics and Myositis video session
February 25 @ 6:00 pm - 7:00 pm EST -
sIBM Patient Video Support session, February 2020, 5 PM ET
February 28 @ 5:00 pm - 6:30 pm EST -
Rare Disease Day $500 Gift Card Giveaway sponsored by Plasma Services Group
February 29 @ 3:00 pm - 4:00 pm EST -
Register to join “An Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis”
February 29 @ 5:00 pm - 6:00 pm EST
