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Myositis Support and Understanding
  • Understanding Myositis
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Today
  • May 2023

  • Tue 9
    Featured May 9, 2023 @ 7:00 pm - 8:30 pm EDT

    What Brings You Joy?

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    Join MSU on Zoom as we embark on an exploration of what joy means to you with the author of The Grieving Project, Lisa Sniderman, and Director of Ops for MSU, Jessica Taylor

  • Tue 23
    Featured May 23, 2023 @ 7:00 pm - 8:30 pm EDT

    The Disability Room

    MSU Zoom Video Session Video session using Zoom

    We will explore the life changing question of, “Am I disabled?” There can be many mixed emotions and thoughts around our disability status. We discuss the history of the American Disability Act in the U.S. and share our thoughts and ideas of what this means to our personal myositis journey.

  • Wed 31
    Mindfulness Discussions with MSU
    Featured May 31, 2023 @ 1:00 pm - 2:00 pm EDT

    Mindfulness Discussions with MSU

    MSU Zoom Video Session Video session using Zoom

    Join MSU with Angelic Ingram on Zoom to learn about and create vision boards, part of our mindfulness program.

  • July 2023

  • Tue 18
    Featured July 18, 2023 @ 7:00 pm - 8:00 pm EDT

    The MINT Clinical Trial for Myositis Patients with Interstitial Lung Disease

    MSU Zoom Video Session Video session using Zoom

    Join Dr. Rohit Aggarwal and MSU for a webinar about The MINT Clinical Trial for Myositis Patients with Interstitial Lung Disease!

  • October 2023

  • Wed 18
    Open Enrollment Webinar
    Featured October 18, 2023 @ 7:00 pm - 8:00 pm EDT

    5 Top Tips for Open Enrollment

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    Join MSU with Michelle Vogel from IV Solutions RX, to learn about financial programs and how to secure your health insurance policy more efficiently.

  • March 2024

  • Wed 13
    Mindfulness
    Featured March 13, 2024 @ 1:00 pm - 2:00 pm EDT

    Mindfulness Discussions with MSU

    MSU Zoom Video Session Video session using Zoom

    Join MSU with Angelic Ingram to learn about mindfulness and for discussions about practices you use. Angelic Ingram leads this discussion session the 2nd Wednesday of the month now on Zoom.

  • April 2024

  • Wed 10
    Mindfulness
    Featured April 10, 2024 @ 1:00 pm - 2:00 pm EDT

    Mindfulness Discussions with MSU

    MSU Zoom Video Session Video session using Zoom

    Join MSU with Angelic Ingram to learn about mindfulness and for discussions about practices you use. Angelic Ingram leads this discussion session the 2nd Wednesday of the month now on Zoom.

  • Wed 17
    Community Orientation Webinar ELPFDD
    Featured April 17, 2024 @ 4:00 pm - 5:00 pm EDT

    Community Orientation Webinar

    MSU Zoom Video Session Video session using Zoom

    Join MSU and TMA for a Community Orientation Webinar to learn how you can participate virtually in the first-ever Adult Dermatomyositis Patient-Focused Drug Development (EL-PFDD) meeting with the FDA. This is exciting and we hope you will register to join us!

    Free
  • May 2024

  • Wed 8
    Mindfulness
    Featured May 8, 2024 @ 1:00 pm - 2:00 pm EDT

    Mindfulness Discussions with MSU

    MSU Zoom Video Session Video session using Zoom

    Join MSU with Angelic Ingram to learn about mindfulness and for discussions about practices you use. Angelic Ingram leads this discussion session the 2nd Wednesday of the month now on Zoom.

  • Thu 9
    Join MSU with 3 Myositis Authors
    Featured May 9, 2024 @ 7:00 pm - 8:00 pm EDT

    Meet Myositis Authors

    MSU Zoom Video Session Video session using Zoom

    Join MSU with Myositis Authors who are writing about their experiences and helpful information for all types of myositis.

  • June 2024

  • Wed 12
    Mindfulness
    Featured June 12, 2024 @ 1:00 pm - 2:00 pm EDT

    Mindfulness Discussions with MSU

    MSU Zoom Video Session Video session using Zoom

    Join MSU with Angelic Ingram to learn about mindfulness and for discussions about practices you use. Angelic Ingram leads this discussion session the 2nd Wednesday of the month now on Zoom.

  • July 2024

  • Mon 22
    Featured July 22, 2024 @ 2:00 pm - 3:00 pm EDT

    Fatigue Management – Mastering Fatigue Pacing for a Balanced Life

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    Join Corene Canaan, Jerry Williams, and Jessica Taylor for a workshop about the importance developing healthy relationships within and outside of the Myositis community.

  • August 2024

  • Mon 5
    Featured August 5, 2024 @ 2:00 pm - 3:30 pm EDT

    Fatigue Management Part 2-Practical Ways To Remove Challenges When Managing Fatigue

    MSU Zoom Video Session Video session using Zoom

    - Join us for part 2 of our Fatigue Management Series!

    Dive into the application of practical ways to remove fatigue challenges, with our expert speaker, Pamela Rose. Discover the keys to effective energy management and conquer fatigue with practical strategies.

  • Mon 19
    Featured August 19, 2024 @ 2:00 pm - 3:00 pm EDT

    Battling Brain Fog

    MSU Zoom Video Session Video session using Zoom

    Join us for an enlightening session on Battling Brain Fog! This presentation will focus on strategies to manage cognitive fatigue, utilizing tools to enhance your daily responsibilities, and finding functional support to improve your overall quality of life.

  • September 2024

  • Wed 18
    Featured September 18, 2024 @ 2:00 pm - 3:00 pm EDT

    Innovative Approaches in Biopharmaceutical Research: Ensuring Patient-Centric Healthcare Solutions

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    In this webinar, we’ll highlight the impactful collaboration between Galapagos and MSU, focusing on our shared dedication to patient-centric healthcare. Our partnership has been vital in several initiatives, including the collection of patient voices for our ongoing Phase 2 clinical trial. At Galapagos, our research in inflammation and oncology is driven by a commitment to ensure that patient perspectives are […]

  • Tue 24
    Featured September 24, 2024 @ 6:00 pm - 7:00 pm EDT

    Shifting Your Mindset

    MSU Zoom Video Session Video session using Zoom

    We are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together!

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