Video Session
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FeaturedRealizing the CAR T Potential in Myositis & Beyond
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesCabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable, perhaps curative, treatment for patients with autoimmune diseases. CABA-201, a CD19-CAR T cell therapy, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases, including adult and juvenile myositis. Tania Gonzalez Rivera, M.D., discusses the application of CAR-T cell […]
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FeaturedLadies Bingo Night
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesWe are thrilled to invite all women with myositis to a unique one-time event: Ladies Bingo Night, sponsored by Priovant! Get ready for a fun-filled evening where you can enjoy Bingo, connect with fellow myositis warriors, and share in the camaraderie of our incredible community!
This event offers a chance to take a break from the challenges of daily life and simply have fun. Connect with other women who understand what you’re going through while participating in an enjoyable game of Bingo!
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FeaturedMyositis Empower Walk Game Night
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesJoin us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event be hosted by our very own Jessica Taylor, Director of Operations for MSU, alongside Taryn Smith from Priovant.
Get ready for a night filled with trivia, laughter, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th, starting at 4 PM, streaming online.
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FeaturedShifting Your Mindset
MSU Zoom Video Session Video session using ZoomWe are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together!
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Your Voice Matters: Practical Strategies for Self-Advocacy in Healthcare
MSU Zoom Video Session Video session using ZoomSpecial Webinar: Your Voice Matters – Practical Strategies for Self-Advocacy in Healthcare! We are thrilled to announce an impactful webinar featuring Meaghan Arnold, a valued member of the Myositis Support and Understanding Medical Advisory Board. This session is designed to empower myositis patients with essential self-advocacy skills! Date: Tuesday, November 19th Time: 2 PM ET / 1 PM CT / […]
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Featured
Shifting Your Mindset
MSU Zoom Video Session Video session using ZoomWe are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together!
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Featured
Shifting Your Mindset
MSU Zoom Video Session Video session using ZoomWe are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together!
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Your Health, Your Voice: Building a Lifesaving Medical Binder
MSU Zoom Video Session Video session using ZoomJoin Us for an Empowering Webinar: "Your Health, Your Voice: Building a Lifesaving Medical Binder" with the Three Myositis Musketeers! We are excited to invite you to an essential webinar hosted by Myositis Support and Understanding (MSU). Meet the team: Jessica Taylor, Director of Operations and a dedicated myositis patient; Benita Moyer, Vice President, committed advocate, and myositis patient; and […]
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Featured
Shifting Your Mindset
MSU Zoom Video Session Video session using ZoomWe are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together!
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FeaturedMeet MSU’s New Executive Director – Elisa Glass
MSU Zoom Video Session Video session using ZoomJoin us on February 17th for a special introduction to our first-ever Executive Director, Elisa Glass! Get to know Elisa and hear about her vision for the future of Myositis Support and Understanding (MSU). This is a fantastic opportunity for our community to connect and share ideas. Date: February 17, 2025 Time: 11 AM PT / 12 PM MT / […]
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FeaturedManaging Your Expectations with Exercise and Movement by Kourage Health
MSU Zoom Video Session Video session using ZoomJoin Kourage Health and MSU for an enlightening webinar on Monday, February 24th: "Managing Expectations with Movement & Exercise." Discover how to approach exercise with the right mindset. We'll emphasize that progress isn’t an overnight fix but a journey requiring consistency and repetition. Learn the importance of maintenance and setting realistic expectations, whether you're a beginner, intermediate, or advanced in […]
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Featured
Shifting Your Mindset
MSU Zoom Video Session Video session using ZoomWe are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together!
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Featured
Shifting Your Mindset
MSU Zoom Video Session Video session using Zoom6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset! This empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the last seven months, we have embarked on a transformative journey together! ✨ Discover Your […]
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FeaturedStandards of Care for Home Infusion
MSU Zoom Video Session Video session using ZoomDate: April 15th Time: 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT Platform: Zoom Hosted by: IV Solutions Rx Join us for an informative webinar on Standards of Care for Home Infusion, designed to equip patients and caregivers with vital knowledge about home infusion therapy. This session will cover a comprehensive range of […]
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FeaturedWebinar: Automotive Mobility Solutions – Features & Benefits
MSU Zoom Video Session Video session using ZoomMonday, April 28th on Zoom 3 PM PT / 4 PM MT / 5 PM CT / 6 PM ET Join us for an insightful webinar focused on exploring the diverse world of automotive mobility solutions. This session aims to educate attendees about the various types of mobility aids available, including driving aids, hand controls, scooter lifts, assist seating, and […]
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The Unseen Grief: Recognizing & Healing from Secondary Loss Workshop
MSU Zoom Video Session Video session using ZoomSaturday, May 10th 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET Join us for an interactive workshop, "The Unseen Grief: Recognizing and Healing from Secondary Loss," specifically designed for both individuals affected by myositis and their care partners. This collaborative session will delve into the often-overlooked aspects of grief experienced by those living […]
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Care Partner Burnout: Supporting Your Loved One While Taking Care of Yourself
MSU Zoom Video Session Video session using ZoomMonday, May 19th 10 AM PT / 11 AM MT / 12 PM CT / 1 PM ET A fatigue-related health condition doesn’t only impact the life of the person who is ill; it often brings significant changes for their loved ones and caregivers as well. Navigating this adjustment can be challenging, and it can be difficult to know how […]
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FeaturedWhat Brings You Joy?
MSU Zoom Video Session Video session using ZoomTuesday, May 20th 4 PM ET / 3 PM CT / 2 PM MT / 1 PM PT Join us for a heartfelt support session in celebration of Myositis Awareness Month. Hosted by acclaimed author Lisa Sniderman of The Grieving Project and Jessica Taylor, Director of Volunteer & Support Operations for MSU, this event marks the third year of this […]
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Myo Night: Making the Best of My Own Night
MSU Zoom Video Session Video session using ZoomThis event is all about embracing your power and celebrating the hero within you. It encourages you to make the best of your night, reinforcing the idea that despite challenges, you can create meaningful moments. Whether you’re participating solo or inviting friends and family, it's an opportunity to share your unique story and celebrate your journey.
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Talented & Unstoppable: Navigating the Job Market with Confidence
MSU Zoom Video Session Video session using ZoomMonday, June 9th 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET Are you ready to navigate the job market with confidence? Join us for "Talented & Unstoppable: Navigating the Job Market with Confidence," a dynamic and informative webinar designed to empower job seekers and equip them with essential tools for success. This engaging […]
