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FeaturedRealizing the CAR T Potential in Myositis & Beyond
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesCabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable, perhaps curative, treatment for patients with autoimmune diseases. CABA-201, a CD19-CAR T cell therapy, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases, including adult and juvenile myositis. Tania Gonzalez Rivera, M.D., discusses the application of CAR-T cell […]
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FeaturedWednesday Evening Myositis Support Group
MSU Zoom Video Session Video session using ZoomAll Myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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FeaturedMen with Myositis Clubhouse Support Room
ClubhouseA safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
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FeaturedLadies Bingo Night
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesWe are thrilled to invite all women with myositis to a unique one-time event: Ladies Bingo Night, sponsored by Priovant! Get ready for a fun-filled evening where you can enjoy Bingo, connect with fellow myositis warriors, and share in the camaraderie of our incredible community!
This event offers a chance to take a break from the challenges of daily life and simply have fun. Connect with other women who understand what you’re going through while participating in an enjoyable game of Bingo!
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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Featured Myosits Cancer SupportMyositis Cancer Support
MSU Zoom Video Session Video session using ZoomWe are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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FeaturedMyositis Empower Walk Game Night
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesJoin us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event be hosted by our very own Jessica Taylor, Director of Operations for MSU, alongside Taryn Smith from Priovant.
Get ready for a night filled with trivia, laughter, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th, starting at 4 PM, streaming online.
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International Myositis Virtual Support Group
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the third Saturday of each month at 2 PM ET for live video support.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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Myositis Reads – A Book Club for Those with Myositis
ClubhouseJoin us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
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FeaturedShifting Your Mindset
MSU Zoom Video Session Video session using ZoomWe are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together!
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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FeaturedIBM Patient Virtual Support Group
MSU Zoom Video Session Video session using ZoomRegister to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
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FeaturedNecrotizing Myopathy Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free -
Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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