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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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1 event,
Featured
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Featured
Cabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable, perhaps curative, treatment for patients with autoimmune diseases. CABA-201, a CD19-CAR T cell therapy, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases, including adult and juvenile myositis. Tania Gonzalez Rivera, M.D., discusses the application of CAR-T cell […] |
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1 event,
Featured
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Featured
All Myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
Free
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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2 events,
Featured
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Featured
A safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
Free
Featured
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Featured
We are thrilled to invite all women with myositis to a unique one-time event: Ladies Bingo Night, sponsored by Priovant! Get ready for a fun-filled evening where you can enjoy Bingo, connect with fellow myositis warriors, and share in the camaraderie of our incredible community! This event offers a chance to take a break from the challenges of daily life and simply have fun. Connect with other women who understand what you’re going through while participating in an enjoyable game of Bingo! |
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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0 events,
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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0 events,
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0 events,
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1 event,
We are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey. |
2 events,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
Featured
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Featured
Join us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event be hosted by our very own Jessica Taylor, Director of Operations for MSU, alongside Taryn Smith from Priovant. Get ready for a night filled with trivia, laughter, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th, starting at 4 PM, streaming online. |
0 events,
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1 event,
All myositis patients, register to join us on the third Saturday of each month at 2 PM ET for live video support.
Free
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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1 event,
Join us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
Free
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1 event,
Featured
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Featured
We are excited to announce our empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the next seven months, we will embark on a transformative journey together! |
0 events,
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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1 event,
Featured
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Featured
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
Free
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1 event,
Featured
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Featured
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
Free
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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0 events,
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0 events,
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0 events,
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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0 events,
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Shifting Your Mindset








