UNDER CONSTRUCTION . . . but coming soon!

We are delighted that almost 600 myositis patients and care partners contributed their voices to our groundbreaking survey, Myositis Journey and Burden of Disease, conducted in May 2022. Myositis refers to Idiopathic Inflammatory Myopathies (IIM) and is made up of a group of rare systemic autoimmune muscle diseases.

The MSU Research Team wants to thank you for your support in this effort. Your perspectives on your journey with myositis and the impact it has on your life and the lives of care partners and others who assist in caregiving have been invaluable.

Please check back between the end of August through mid-September 2023 for the results and presentation for this page to appear or be sure you are a registered member and you will receive an email when the details are ready. Membership is free. Register Today!

We are finalizing the presentation to make it easy to read and follow along so you can understand the results of the Myositis Journey and Burden of Disease survey including patients and care partners. This is a part of our Simply Put promise; to make the results of research and educational information easy to understand no matter your background.

© 2024 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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