Week of Events
Weekly Sunday Clubhouse Support
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Myositis Reads – A Book Club for Those with Myositis
Join us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician
Tuesday, January 20 12 PM ET/11 AM CT/10 AM MT/9 AM PT Join us for an informative webinar on the results of the VALOR study, which tested an investigational, once-daily oral medication for adults with dermatomyositis (DM) in the largest DM clinical trial ever conducted. In this 30-minute session, rheumatologist Dr. Iazsmin Ventura (University of Chicago) will review the study findings and […]
Myositis Cancer Support Group
We are excited to announce a special support group dedicated to Myositis patients who are currently battling cancer or are survivors.
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Tendon Transfer for Inclusion Body Myositis (IBM)
Date: January 23 Time: 2 PM ET/1 PM ET/12 PM ET/11 AM PT MSU is thrilled to host an upcoming education session on Tendon Transfer Surgery for IBM patients - an option that may help improve hand function and independence. Whether you're a patient, caregiver, or advocate, join MSU hosts Manuel Lubinus, CSO and Lynn Wilson, President, to learn more […]
