Events

Sunday, January 18, 2026

• Featured January 18, 2026 7:00 pm - 9:00 pm

  Featured Weekly Sunday Clubhouse Support

Featured January 18 @ 7:00 pm - 9:00 pm EST
Weekly Sunday Clubhouse Support
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free

Monday, January 19, 2026

• Featured January 19, 2026 3:00 pm - 4:30 pm

  Featured Myositis Reads – A Book Club for Those with Myositis

Featured January 19 @ 3:00 pm - 4:30 pm EST
Myositis Reads – A Book Club for Those with Myositis
Join us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
Free

Tuesday, January 20, 2026

• January 20, 2026 12:00 pm - 1:00 pm

  A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician


January 20 @ 12:00 pm - 1:00 pm EST

A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician

Tuesday, January 20 12 PM ET/11 AM CT/10 AM MT/9 AM PT Join us for an informative webinar on the results of the VALOR study, which tested an investigational, once-daily oral medication for adults with dermatomyositis (DM) in the largest DM clinical trial ever conducted. In this 30-minute session, rheumatologist Dr. Iazsmin Ventura (University of Chicago) will review the study findings and […]

Wednesday, January 21, 2026

• Featured January 21, 2026 7:00 pm - 8:30 pm

  Featured Myositis Cancer Support Group

Featured January 21 @ 7:00 pm - 8:30 pm EST
Myositis Cancer Support Group
We are excited to announce a special support group dedicated to Myositis patients who are currently battling cancer or are survivors.
Free

Thursday, January 22, 2026

• Featured January 22, 2026 1:00 pm - 2:30 pm

  Featured Myositis Support Gets Moving on Clubhouse

Featured January 22 @ 1:00 pm - 2:30 pm EST
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free

Friday, January 23, 2026

• Featured January 23, 2026 2:00 pm - 3:00 pm

  Featured Tendon Transfer for Inclusion Body Myositis (IBM)


Featured January 23 @ 2:00 pm - 3:00 pm EST

Tendon Transfer for Inclusion Body Myositis (IBM)

Date: January 23 Time: 2 PM ET/1 PM ET/12 PM ET/11 AM PT MSU is thrilled to host an upcoming education session on Tendon Transfer Surgery for IBM patients - an option that may help improve hand function and independence. Whether you're a patient, caregiver, or advocate, join MSU hosts Manuel Lubinus, CSO and Lynn Wilson, President, to learn more […]

Saturday, January 24, 2026

No events on this day.