Myositis Support and Understanding Association Welcome graphic with our name and All-Volunteer, Patient-Led nonprofit working to improve the quality of life for myositis patients and caregivers

To say this has been an eventful year so far for our Research Team is an understatement – published in Rheumatology, hosted an FDA Listening session on Adult Dermatomyositis – but, wait, there is more! We are going international!

We will be attending the Global Conference on Myositis in Prague where MSU will be represented in 2 scientific posters and presenting our own patient organization poster:

  • Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies: Click to view poster
  • Systematic review and patient perceptions of tendon transfers in inclusion body myositis to improve hand function: Click to view poster

We are looking forward to meeting new friends, seeing old friends, and connecting with dedicated Myositis clinicians and researchers from around the world.  We are on this journey together – working to find better treatments to ease the burden of our debilitating disease.

You are not alone. Your voice is being heard.



Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support


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© 2023 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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