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Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.
MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.
We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.
We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.
The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!
Press Release: Myositis Support and Understanding Association celebrates Myositis Awareness month with #MyositisLIFE-themed activitiesMyositis Support, , , News, Press, 0
Lincoln, DE – May 1, 2016 – What is your #MyositisLIFE? May is Myositis Awareness Month. Myositis Support and Understanding Association...
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November 28, 2017 6:30 pm - 8:00 pm
Register today for the MSU Caregivers, Family Members, and Friends online video support session in celebration of our Myositis Caregivers and National Family Caregivers Month. Tuesday, November 28th @ 6:30PM EDT. Join Barbara and Betsy for a discussion about Myositis and Caregiving. Ask questions, share your experience, or just listen and watch. Event is free!
November 30, 2017 3:00 pm - 4:30 pm
IBM patients, mark your calendar and join us for this free video support session with Mary Jane on Nov. 30th, 3PM Eastern Time. Share experiences, ask questions, compare notes, and make new friends. This session is tailored to those diagnosed with, or suspected of having, Inclusion Body Myositis.