Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.
MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.
We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.
We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.
The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!
, , Dermatomyositis, Featured, News, Video
Dr. Victoria Werth joined us live online for a video education session titled, "Skin findings seen with myositis autoantibodies...
Plasma Services Group (PSG) joined us for a live video discussion about donating plasma for medical research. You could...
CSI Pharmacy joined us for a live video education session about IG therapy, both IVIG and SCIG. Health insurance...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
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Interstitial lung disease (ILD) is a well-recognized complication in the spectrum of diseases known as the idiopathic inflammatory myopathies...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
We are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
DETERMINE - a Phase 3 trial designed to evaluate the efficacy and safety of lenabasum for the treatment of adults...
MSU has come a long way since the beginning in 2010 with our first Facebook support group and subsequent...
, , Dermatomyositis, Featured, News
New locations announced. DETERMINE is a double-blind, placebo-controlled 1-year study designed to test the efficacy and safety of lenabasum...
, , Dermatomyositis, Featured, News
The research found that DM patients with the anti-transcriptional intermediary factor 1 (anti-TIF1) antibody were more than three times...
MSU is just getting started. You see, as long as there are still people dying from the various myositis...
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Clinical trials and studies require patient groups in clearly defined categories, but the multiple diagnostic and classification criteria used...
Updated April 23, 2019 - Study is fully enrolled. One of our goals is to provide inclusion body...
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In this study, the researchers set out to determine if there was a distinction between the type of autoantibodies...
Amazon's donate feature is a part of the various tools and programs MSU uses to make donating fast and easy....
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