MSU Myositis Awareness Month Apparel, three campaigns to choose from, or purchase from all. #MyoForest, #MyoRainbow, and #MyoHeartsandMinds
Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.
MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.
We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.
We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.
The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!
Orphazyme announces topline results of Phase 2/3 trial of arimoclomol for Inclusion Body Myositis (IBM)
, , Featured, Inclusion Body Myositis (IBM), News
Learn more about the announcement from Orphazyme, communicating the topline results from the Phase 2/3 trial of arimoclomol for...
Diversity, Equity, & Inclusion are not buzz words, a trend, or a P.R. campaign for our organization. MSU has...
If you have a black story (especially if it pertains to a myositis journey) you would like to tell,...
The COVID vaccine is here, but what does that mean for us with myositis? MSU provides answers to some...
Meet Dr. Bhai who is working together with MSU, collaborating on myositis patient-centered research, patient education, grants, and improving...
Manuel Lubinus, MBA, Ph.D. has been appointed to our newly created Scientific Advisory Board as Patient-Centric Research Advisor and...
Myositis Support and Understanding (MSU) announces the formation of its Diversity, Equity, and Inclusion Committee
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MSU’s Diversity, Equity, and Inclusion Committee's goal is to amplify more wide-ranging voices, while increasing MSU’s ability to serve...
Trusted resources and updates about the coronavirus (COVID-19) pandemic and myositis, including newly updated information and resources to help...
MSU supports our myositis community members who are Black and are other People of Color (POC)
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Until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able...
Help researchers and clinicians better understand how patients with myositis and other autoimmune conditions feel about COVID-19/the novel coronavirus.
Watch the webinar as we welcome Babette Reeves, MA, MSW, LCSW, Behavioral Medicine Specialist, and she shares tools for...
Partner Spotlight: How Myositis Support and Understanding Association adapts and stays nimble
Charlene Fernandez of RDMD put MSU in the spotlight for Myositis Awareness Month, May 2020. Read the article to learn about MSU and two of the board members who also manage daily operations, and who are also living with myositis themselves.
Read the full article at https://www.rdmd.com/blog/partner-spotlight-myositis-supportand-understanding-association
Learn more about the RDMD and MSU partnership.
Make your own fabric masks with this helpful information and some how-to videos for sew and no-sew fabric masks...
Financial Assistance Available for the Myositis Patient Community Impacted by COVID-19
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Myositis Support and Understanding Association Commits to Providing at least $60K in Financial Assistance for Myositis Patients Impacted by...
Learn more about using Zoom for MSU video support, activity and education sessions. Keeping software updated is important, as...
Clinical Trial of Arimoclomol in Inclusion Body Myositis during the COVID-19 Pandemic
, , Featured, Inclusion Body Myositis (IBM), News
Information from Orphazyme A/S about the Clinical Development of Arimoclomol in sIBM during the COVID-19 Pandemic. Read a statement...
MSU’s evolving plans for supporting the myositis community during the COVID-19 pandemic
, , Featured, Healthcare Tips, News
In light of the Coronavirus (COVID-19) worldwide pandemic Myositis Support and Understanding (MSU) will be shifting our focus to...
Many types of myositis (inflammatory myopathy) disproportionately affect women and women of color and there is much work to...
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