Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.
MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.
We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.
We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.
The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!
Press Release: Myositis Support and Understanding Association celebrates Myositis Awareness month with #MyositisLIFE-themed activitiesMyositis Support, , , News, Press, 0
Lincoln, DE – May 1, 2016 – What is your #MyositisLIFE? May is Myositis Awareness Month. Myositis Support and Understanding Association...
Search our site
PR: MSU, Portable Genomics teaming up to bring a tailored health data management platform to myositis patients May 16, 2018
Portable Genomics and Myositis Support and Understandin...
Speaking engagement about myositis at Corbus Pharmaceuticals May 15, 2018
Corbus Pharmaceuticals will host Jerry Williams, the Fo...