Myositis Support and Understanding Association (MSU) has joined forces with 30 million Americans and health care advocates around the...
Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.
MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.
We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.
We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.
The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!
Press Release: Myositis Support and Understanding Association celebrates Myositis Awareness month with #MyositisLIFE-themed activitiesMyositis Support, , , News, Press, 0
Lincoln, DE – May 1, 2016 – What is your #MyositisLIFE? May is Myositis Awareness Month. Myositis Support and Understanding Association...
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April 21 @ 12:00 pm - 1:00 pm EDT
April 27 @ 5:00 pm - 7:00 pm EDT
Polymyositis: the evolution of this diagnosis in light of recent research by Dr. Lisa-Christopher-StineMay 1 @ 2:00 pm - 3:00 pm EDT
May 9 @ 5:00 pm - 6:00 pm EDT
Myositis Support and Understanding Association Partners with Antidote Technologies for Clinical Trial Matching April 3, 2018
Myositis Support and Understanding Association (MSU), a...
When our precious children lash out due to parental chronic illness March 25, 2018
Living with, and trying to overcome, autoimmune disease...