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  Take Action - The Time for Waiting is Over!

Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.

MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.

We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.

We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.

The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!

Partner Spotlight: How Myositis Support and Understanding Association adapts and stays nimble

Charlene Fernandez of RDMD put MSU in the spotlight for Myositis Awareness Month, May 2020. Read the article to learn about MSU and two of the board members who also manage daily operations, and who are also living with myositis themselves. 

Read the full article at https://www.rdmd.com/blog/partner-spotlight-myositis-supportand-understanding-association

Learn more about the RDMD and MSU partnership.

 

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Get Support!

Myositis patients and caregivers can connect with others who understand what they are going through by joining our support community via the Inspire iOS app or by visiting our Myositis Support Community.

Upcoming Events

Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern
Fri 30

IBM Patient Video Support session

October 30 @ 5:00 pm - 6:30 pm EDT
IMNM Patient Video Support, last Saturday of the month at 3 PM ET
Sat 31

Necrotizing Myopathy Patient Video Support session

October 31 @ 3:00 pm - 4:30 pm EDT
Myositis Patient Video Support, first Wednesdays session at 7 PM ET
Nov 04

Monthly Wednesday Evening Myositis Patient Video Support

November 4 @ 7:00 pm - 8:30 pm EST

View More…

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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