Myositis Support and Understanding Association Elects Four New Board Members

LINCOLN, DE, UNITED STATES, August 22, 2018 — Myositis Support and Understanding Association, an all-volunteer, patient-centered 501(c)(3) nonprofit organization is pleased to announce the addition of four new members to its Board of Directors.

Joining the association are Jim Doiron from Leesburg, VA; Lynn Wilson, from Taylor Lake Village, TX; Caitlin Ray from Louisville, KY and Dr. Beverly Boyarsky from North Babylon, NY.

“All four of our newest Board members embody the spirit of the myositis community and bring talent, expertise and energy to the table,” said Jerry Williams, Founder and President of the Myositis Support and Understanding Association. “We are fortunate to have them by our side. Each one of them will be a tremendous asset to the Association as we further our mission to improve the lives and empower those fighting Myositis through education, support, awareness, advocacy, and access to research.”

The newly elected board members join Founder and President, Jerry Williams from Lincoln, DE; Treasurer, Penny Bundy from Vian, OK; Secretary, Julie Posey from Cincinnati, OH; Board Member, Peggy Albertson from Fort Wayne, IN, and Advisor to the Board, Emily Filmore, as a part of the MSU all-volunteer working board of directors.

About Myositis Support and Understanding

Myositis Support and Understanding Association (MSU), founded by Jerry Williams, a patient with polymyositis, was created after identifying a need for more patient-focused programs and services. MSU is an all-volunteer, patient-centered 501(c)(3) nonprofit organization supporting patients and caregivers affected by the Inflammatory Myopathies, which include dermatomyositis, polymyositis, necrotizing autoimmune myopathy, and inclusion body myositis, along with the juvenile forms of dermato- and polymyositis.

MSU has been instrumental in helping to improve the lives of patients fighting this rare, complicated immune-mediated muscle, skin, and often multi-organ disease by being the very first patient-centered organization to offer live, online, video patient support and education sessions that simply make sense for those living with a muscle disease that involves limited mobility and with patients spread across the world.

MSU also provides a “Simply Put” education series, offers clinical trial matching, advocacy, online support, awareness building programs, and need-based financial assistance for patients. As a fast-growing nonprofit organization, MSU is continually assessing the needs of the myositis community to move forward in providing programs, technology, and partnerships that match with their mission and vision.

View the official press release

 

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are key to helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage our fast growing organization.

View more information: Myositis Support

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