Share your story

Living with or caring for someone living with the Rare Disease, Myositis

Share how you Celebrated your Caregiver for MSU's 2nd Birthday!

MSU turns 2 years-old and we want you to celebrate your caregiverWe want to read and share your story about living with or caring for someone living with Myositis. Sharing your story will not only help advance awareness of Myositis, it will also help others understand how this rare disease affects each of us differently.

Throughout the month of August 2017, in recognition of our second anniversary as a nonprofit organization, we want you to “Celebrate your Caregiver” and share the experience with us!

Simply use the form below to submit your story, video, and/or photos to us. (Videos must be uploaded to YouTube and then you provide us a link to it in the form.) Once approved, we will add it to our website and share with our social networks.

By submitting your story, video, photos, and any other content you provide to us, you are granting us permission to share these publicly. We will never share your personal information such as email address. 

To have this post under your name as the author you must register as a member of MSU and be logged in to your account. If you are not yet a registered member, you can register here. To login to your account, see the Login link at the top of the page.

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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PIONEER, Idera clinical trial for dermatomyositis

PIONEER, Idera clinical trial for dermatomyositis

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Hi, this may be interesting to you: Share your story! The link is included below: https://understandingmyositis.org/share/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.