Educational information about the various types of the rare diseases referred to as simply myositis, estimated to affect 50-75K people in the U.S.
Find information about commonly associated complications and overlaps with myositis.
Additional studies and information coming soon!
We are a patient-centered, all-volunteer 501(c)(3) nonprofit organization, Empowering the Myositis Community! And, we are the leading myositis support network!
We all have experiences to share that will make a difference in the lives of other myositis patients and caregivers. They can also help promote awareness and research for myositis. Check out our new #MyositisLIFE website launched May 1, 2019, and share yours!
Share your topic-based story, image, video, or meme.
Find help, tips, and resources to support you in your role. We will be adding more to this section over time.
Text MYOSITIS to 707070 to start your text donation! Then simply follow the directions provided.
Have you lost a loved one with myositis? Submit their information so we can remember them publicly during our Annual Day of Rememberance in May 2020.
Check out Myositis Educational Videos!
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Shopping the MSU store helps us help you, as well as helping to promote awareness of myositis.
Shipping in the U.S. is included. International orders are welcome, but shipping is additional.
We ask that you allow 7-10 days for delivery.
9125 N. Old State Road
Lincoln, DE 19960 USA
T: 888-MYO-RARE (696-7273)
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MSU is an all-volunteer nonprofit so your donation goes further in helping empower the myositis community.
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Text MYOSITIS to 707070 to start your mobile donation!
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