Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at...
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at...
Partner Spotlight: How Myositis Support and Understanding Association adapts and stays nimble
Charlene Fernandez of RDMD put MSU in the spotlight for Myositis Awareness Month, May 2020. Read the article to learn about MSU and two of the board members who also manage daily operations, and who are also living with myositis themselves.
Read the full article at https://www.rdmd.com/blog/partner-spotlight-myositis-supportand-understanding-association
Learn more about the RDMD and MSU partnership.
Watch to learn about different types of orthotics and braces that may be helpful for people with myositis. We...
Clinical Trial of Arimoclomol in Inclusion Body Myositis during the COVID-19 Pandemic
, , Featured, Inclusion Body Myositis (IBM), News
Information from Orphazyme A/S about the Clinical Development of Arimoclomol in sIBM during the COVID-19 Pandemic. Read a statement...
Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis
, , Featured, Inclusion Body Myositis (IBM)
Orphazyme's Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis, an incurable rare progressively debilitating muscle-wasting disease...
Summary of Dysphagia in patients with sporadic inclusion body myositis: Management challenges
, , Featured, Inclusion Body Myositis (IBM)
A summary of the review, including Coping Strategies provided by MSU International Science Advisor and IBM patient, Bill Tillier....
Announcing the Mary Jane DeLauder Memorial Fund for inclusion body myositis
, , Featured, Inclusion Body Myositis (IBM), News, Press
Mary Jane's passion for welcoming and educating was well-known throughout the myositis community. That’s why we can think of...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
Watch the RDMD recording of the live video session we did in early 2019 to learn more about the...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM
, , Inclusion Body Myositis (IBM), Video
Watch "An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM" with Dr. Mazen Dimachkie,...
We are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
During Myositis Awareness Month, May 2018, we placed a large focus on patient education by hosting some of the...
EULAR/ACR Classification Criteria for Adult and Juvenile Idiopathic Inflammatory Myopathies and Their Major Subgroups
, , Featured, News
Clinical trials and studies require patient groups in clearly defined categories, but the multiple diagnostic and classification criteria used...
Advances in the Early Diagnosis and Therapy of Inclusion Body Myositis
, , Featured, Inclusion Body Myositis (IBM)
The purpose of this article is to describe advancements in the diagnosis of Inclusion Body Myositis (IBM) and therapy...
Updated April 23, 2019 - Study is fully enrolled. One of our goals is to provide inclusion body...
We would like to let you know about a clinical research study that is available for patients diagnosed with...
New Insights on sporadic Inclusion body myositis (sIBM) pathogenesis
, , Inclusion Body Myositis (IBM), News, Video
Dr. Conrad "Chris" Weihl joins MSU live for a session titled "New Insights on sporadic Inclusion body myositis (sIBM)...
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