Join us on August 30th at 5 PM ET for live Video Support Session for those diagnosed with Inclusion...
July 26th at 4 PM ET. LIve Video Support Session for those diagnosed with Inclusion Body Myositis (IBM), also...
Announcing the Mary Jane DeLauder Memorial Fund for inclusion body myositis
, , Featured, Inclusion Body Myositis (IBM), News, Press
Mary Jane's passion for welcoming and educating was well-known throughout the myositis community. That’s why we can think of...
June 28th at 4 PM ET. LIve Video Support Session for those diagnosed with Inclusion Body Myositis (IBM),...
May 31, 2019, at 4 PM ET. IBM patients, bring your spouse, life partner, caregiver, children, pets, and anyone...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
Join us live on our YouTube LIVE channel Sunday, May 26, 2019, starting at 2 PM EDT for “A...
The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
Watch the RDMD recording of the live video session we did in early 2019 to learn more about the...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM
, , Inclusion Body Myositis (IBM), Video
Watch "An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM" with Dr. Mazen Dimachkie,...
We are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
During Myositis Awareness Month, May 2018, we placed a large focus on patient education by hosting some of the...
EULAR/ACR Classification Criteria for Adult and Juvenile Idiopathic Inflammatory Myopathies and Their Major Subgroups
, , Featured, News
Clinical trials and studies require patient groups in clearly defined categories, but the multiple diagnostic and classification criteria used...
Advances in the Early Diagnosis and Therapy of Inclusion Body Myositis
, , Featured, Inclusion Body Myositis (IBM)
The purpose of this article is to describe advancements in the diagnosis of Inclusion Body Myositis (IBM) and therapy...
Updated April 23, 2019 - Study is fully enrolled. One of our goals is to provide inclusion body...
We would like to let you know about a clinical research study that is available for patients diagnosed with...
New Insights on sporadic Inclusion body myositis (sIBM) pathogenesis
, , Inclusion Body Myositis (IBM), News, Video
Dr. Conrad "Chris" Weihl joins MSU live for a session titled "New Insights on sporadic Inclusion body myositis (sIBM)...
Orphazyme formally assumes the sponsorship of Phase II/III arimoclomol trial for sIBM
, , Inclusion Body Myositis (IBM), News
On December 14, 2017, Orphazyme A/S, University of Kansas Medical Center, and UCL announced that Orphazyme formally assumes the...
A touching personal story from the daugher of a myositis patient remembering that her Dad, her longtime hero, ...
FDA grants Orphazyme drug arimoclomol orphan drug designation in the U.S.
, , Inclusion Body Myositis (IBM), News
Orphazyme A/S, a Danish biotech company with a late-stage orphan drug pipeline, today announced that the U.S. Food and...
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Upcoming Events
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IBM Patient Video Support Session, August 2019
August 30 @ 5:00 pm - 6:30 pm EDT -
Myositis Patient Video Support Session, September 12, 2019
September 12 @ 7:00 pm - 8:30 pm EDT
