Myositis is such a strange and devastating disease. It affects people of different ages, areas of the body and at different speeds. I have found the members of this group to be very helpful in offering their advice to the physical problems that myositis causes. In return, I too have been able to give advice in many areas I am familiar with. I love this group. Many are like family to me. I am so glad I found this safe haven to call my home away from home.
Author: Jerry Williams
Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more. (NOTE: Some things are posted under Jerry Williams but he is not the true author. This is because he manages the website.)
View more information: Jerry Williams
- Join the Yale Inclusion Body Myositis Registry April 15, 2019
- An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video March 22, 2019
- The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort March 19, 2019