Understanding the Dermatomyositis Journey & Experience

Understanding the Dermatomyositis Journey & Experience

Are you living with Dermatomyositis? Share your personal journey with us.

Research Objectives

The goal of this market research study is to bring the voices of people living with Dermatomyositis to life. By speaking directly with patients, we hope to deeply understand your personal experiences, challenges, and needs. The hope is that through this work, we can raise greater awareness and understanding of the disease, and the emotional journey people experience. The research is being conducted by London Scout, Inc. in partnership with a pharmaceutical company.

Who We Are Looking For

We are seeking 10 people living with Dermatomyositis who would be willing to share their personal experience in a market research study.


Participants that qualify will be asked to complete an online journal exercise for an hour a day, over 3 days (estimated 3 hours total to be completed on your own time on assigned dates). Those who participate in the online portion may be asked to also participate in a 1-hour phone interview. Compensation will be provided.

Compensation for the online journal exercise will be $350 USD (total 3-hour involvement). Compensation for the 1-hour interview will be $150 USD.

If you or someone you know may be interested, please reach out to Fyona Park, fyona@londonscoutnyc.com



Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support


Leave a reply

Your email address will not be published.


This site uses Akismet to reduce spam. Learn how your comment data is processed.

© 2022 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

Log in with your credentials


Forgot your details?

Create Account

Send this to a friend