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Event Series Event Series: International Myositis Patient Support

International Myositis Patient Support

May 17 @ 2:00 pm - 4:00 pm EDT

Free

Starting at 2 PM Eastern time

(1 PM CT, 12 PM MT, 11 AM PT)

Myositis Patients & Care Partners, click the button below to register to attend.

Special International Support Session: Home & Life Adaptations with Myositis

We are excited to invite our community to a unique and interactive session titled “Home & Life Adaptations with Myositis” on Saturday, May 17th. This special support group aims to bring together individuals living with Myositis to share insights, strategies, and practical solutions for navigating daily life.

What to Expect:

This session will be a collaborative space where participants can discuss the adaptations they’ve implemented in their homes and lives to make day-to-day activities easier and more manageable. We encourage everyone to share their personal tips and tricks, whether it’s innovative gadgets they’ve discovered, ergonomic designs that have transformed their spaces, or effective methods for managing emotions and maintaining mental well-being.

Discussion Topics Will Include:

  • Ergonomic Home Design: What changes have you made to your living space?
  • Managing Emotions: How do you cope with the emotional aspects of living with Myositis?
  • Support Networks: Share how building connections has impacted your journey.
  • Mobility Solutions: What tools or techniques do you use to navigate your home?
  • Helpful Gadgets: Are there any devices or accessories that have simplified your daily tasks?
  • Household Adjustments: What clever modifications have you made to enhance your comfort?

This is an invaluable opportunity to learn from one another, discover new ways to enhance your quality of life, and foster a deeper sense of community.

Don’t miss out on this chance to share your experiences and gather new ideas that could make a significant difference in your daily life. Together, we can empower one another and develop creative solutions that work for everyone!

Join us and be a part of the dialogue!

Check out all of our video support sessions, and other support options. 

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How do I join video support sessions?

Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.

To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.

To install Zoom on a device: Visit your App store and search for Zoom and install.

Then, visit our Events Calendar and register for the monthly support sessions that interest you.

If you need additional help, we have Zoom help documents with more detail.

Why do I have to register?

Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Register once to attend the International Saturday Patient Support After you register, you will receive an email with the details to join.

Register again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime.

Tags:

Venue

MSU Zoom Video Session
Video session using Zoom
View Venue Website

Organizer

Myositis Support and Understanding (MSU)
Email
info@UnderstandingMyositis.org
View Organizer Website

Other

Suggested Audience
Myositis Patients & Caregivers

© 2025 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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