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  • MYOCONNECT Summit – A Call to Action

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    MSU Zoom Video Session Video session using Zoom

    We are excited to invite you to register now for the MYOCONNECT Virtual Summit, hosted by Myositis Support and Understanding (MSU). This landmark event marks the launch of the MYOCONNECT Education and Empowerment Forum, a new platform dedicated to putting patients’ voices first through trusted, patient-focused education and powerful resources.  Summit Date: August 30th | 11 AM – 6 PM […]

  • A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician

    MSU Zoom Video Session Video session using Zoom

    Tuesday, January 20 12 PM ET/11 AM CT/10 AM MT/9 AM PT Join us for an informative webinar on the results of the VALOR study, which tested an investigational, once-daily oral medication for adults with dermatomyositis (DM) in the largest DM clinical trial ever conducted. In this 30-minute session, rheumatologist Dr. Iazsmin Ventura (University of Chicago) will review the study findings and […]

  • Understanding Clinical Trials In Myositis: NK Cell Research in Current Myositis Studies

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    MSU Zoom Video Session Video session using Zoom

    Wednesday, February 11, 2026 10 AM ET/ 9 AM CT/ 8 AM MT/ 7 AM PT Join us for an educational webinar focused on clinical trials and the  potential of NK cell therapy's role in current myositis research.  Learn more about new emerging cell therapies for dermatomyositis, polymyositis, immune-mediated necrotizing myopathy and Antisynthetase Syndrome from one of our community's most […]

  • CAR T In Myositis : An Update on the RESET-Myositis Clinical Trial

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    MSU Zoom Video Session Video session using Zoom

    Please join MSU and Jake Chung, PharmD and a Senior Director on the Medical Affairs team at Cabaletta Bio. During this session, Jake will provide a brief overview of the clinical trial process, review key components of the immune system, and describe how CAR T cell therapy works.

  • Mitochondria First in Inclusion Body Myositis: A Chicken or Egg dilemma – The interplay between mitochondrial dysfunction and inflammation in IBM

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    MSU Zoom Video Session Video session using Zoom

    Wednesday, February 25, 2026 11:00 AM ET (4 PM GMT) 10 AM CT/ 9 AM MT/ 8 AM PT This webinar brings recent scientific discoveries directly to the IBM community. Dr.  Rita Horvath and Dr Felix Kleefeld  will explain how mitochondrial dysfunction may initiate the disease process in IBM, how the immune system becomes involved, and why these findings are […]

  • Pain as an under recognized symptom of Myositis

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    MSU Zoom Video Session Video session using Zoom

    Thursday, May 7 4 PM ET/ 3 PM CT/ 2 PM MT/ 1 PM PT   Pain is a critical but often overlooked symptom in myositis. This webinar will empower patients, caregivers, and healthcare professionals with the knowledge to recognize, assess, and address pain in IIM, fostering better patient-centered care. Don’t miss this opportunity to engage with Dr. Saygin and advance […]

  • Dermatomyositis: Research, Real Life & the Lived Experience of Patients of Color

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    MSU Zoom Video Session Video session using Zoom

    Wednesday, May 13 7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PT   Join us for a casual, interactive fireside chat exploring new research from UAB and MSU highlighting the diagnostic and psychosocial experiences of people living with dermatomyositis, including important disparities reported by patients of color.  This session will highlight key findings from a recent survey-based […]

  • Travel IS Still Possible: Accessible travel isn’t a dream – it’s a plan and you’re ready to start

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    MSU Zoom Video Session Video session using Zoom

    Tuesday, May 19 2 PM ET/ 1 PM CT/ 12 PM MT/11 AM PT Let's talk accessible travel with Lesli Wang and MSU!  We all know Lesli as the inventor and manufacturer of the Free2Go Rollator, an award-winning toilet safety and mobility aid.  This device has helped shape the future of accessible and stress free, safer  travel for myositis patients. […]

  • The Hidden Weight of Care: Survey Insights and Creating Your Personal Care Map

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    MSU Zoom Video Session Video session using Zoom

    Wednesday, May 27 3 PM ET/ 2 PM CT/1 PM MT/ 12 PM PT    Caregiving carries emotional, mental, and physical demands—often over a long and unpredictable journey. This session shares insights from the MSU Carers Survey, highlighting the unique challenges faced by those caring for loved ones with Inclusion Body Myositis (IBM). Led by Marlene and Rod Jansen, this […]