Video Education Session
Events
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Pain as an under recognized symptom of Myositis
FeaturedMSU Zoom Video Session Video session using ZoomThursday, May 7 4 PM ET/ 3 PM CT/ 2 PM MT/ 1 PM PT Pain is a critical but often overlooked symptom in myositis. This webinar will empower patients, caregivers, and healthcare professionals with the knowledge to recognize, assess, and address pain in IIM, fostering better patient-centered care. Don’t miss this opportunity to engage with Dr. Saygin and advance […]
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Dermatomyositis: Research, Real Life & the Lived Experience of Patients of Color
FeaturedMSU Zoom Video Session Video session using ZoomWednesday, May 13 7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PT Join us for a casual, interactive fireside chat exploring new research from UAB and MSU highlighting the diagnostic and psychosocial experiences of people living with dermatomyositis, including important disparities reported by patients of color. This session will highlight key findings from a recent survey-based […]
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Travel IS Still Possible: Accessible travel isn’t a dream – it’s a plan and you’re ready to start
FeaturedMSU Zoom Video Session Video session using ZoomTuesday, May 19 2 PM ET/ 1 PM CT/ 12 PM MT/11 AM PT Let's talk accessible travel with Lesli Wang and MSU! We all know Lesli as the inventor and manufacturer of the Free2Go Rollator, an award-winning toilet safety and mobility aid. This device has helped shape the future of accessible and stress free, safer travel for myositis patients. […]
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The Hidden Weight of Care: Survey Insights and Creating Your Personal Care Map
FeaturedMSU Zoom Video Session Video session using ZoomWednesday, May 27 3 PM ET/ 2 PM CT/1 PM MT/ 12 PM PT Caregiving carries emotional, mental, and physical demands—often over a long and unpredictable journey. This session shares insights from the MSU Carers Survey, highlighting the unique challenges faced by those caring for loved ones with Inclusion Body Myositis (IBM). Led by Marlene and Rod Jansen, this […]
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Your Diagnosis is Our Focus!
FeaturedMSU Zoom Video Session Video session using ZoomThursday, June 25, 2026 12:00 PM ET/ 11:00 AM CT/10:00 AM MT/9:00 AM PT 💙 Join our friends at Plasma Services Group to discuss a new study to improve disease detection, diagnostics, and patient care for those with Polymyositis. 🔎 Learn more from Mike Delahanty, Olivia Albertson and Susan Czekay (PSG) about how you can participate in an at-home […]








