Calendar of Events
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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0 events,
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0 events,
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1 event,
Featured
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Featured
All Myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
Free
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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0 events,
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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2 events,
Featured
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Featured
A safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
Free
Women living with any type of myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
Free
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0 events,
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0 events,
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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0 events,
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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0 events,
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1 event,
Featured
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Featured
Date: April 15th Time: 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT Platform: Zoom Hosted by: IV Solutions Rx Join us for an informative webinar on Standards of Care for Home Infusion, designed to equip patients and caregivers with vital knowledge about home infusion therapy. This session will cover a comprehensive range of […] |
1 event,
We are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey. |
1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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1 event,
All myositis patients, register to join us on the third Saturday of each month at 2 PM ET for live video support.
Free
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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1 event,
Join us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
Free
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0 events,
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0 events,
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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1 event,
Featured
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Featured
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
Free
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1 event,
Featured
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Featured
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
Free
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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1 event,
Featured
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Featured
Monday, April 28th on Zoom 3 PM PT / 4 PM MT / 5 PM CT / 6 PM ET Join us for an insightful webinar focused on exploring the diverse world of automotive mobility solutions. This session aims to educate attendees about the various types of mobility aids available, including driving aids, hand controls, scooter lifts, assist seating, and […] |
0 events,
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0 events,
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
|
1 event,
Featured
-
Featured
Join Us for The Patient Voice Workshop! We invite you to The Patient Voice Workshop on Friday, May 2, 2025, at the beautiful Huntsville Botanical Gardens in Huntsville, Alabama from 10 AM to 4 PM. (This is an in person event) This enriching event promises insightful sessions and meaningful connections. Highlights Include: Panel Discussion: Engage in powerful storytelling focused on quality […] |
1 event,
Featured
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Featured
Join Myositis Support & Understanding for the Myositis Moon Walk, an extraordinary livestream event that invites participants to embark on a unique journey through the U.S. Space and Rocket Center! Experience the awe of walking alongside iconic rockets and historic space artifacts, all while raising awareness and support for the Myositis community. The route will provide an inspiring backdrop as […] |
Standards of Care for Home Infusion
The Patient Voice Workshop
