Myositis causes pain and fatigue. Exercise can help.

This session, hosted by MSU on August 15, 2019 with Helene Alexanderson, Ph.D., talks about the experience of pain and fatigue in adult polymyositis and dermatomyositis based on results from qualitative studies, and how to adapt physical activity and exercise in relation to pain and fatigue.

Below is the recording and the slides for you to learn from along with resources for a PM/DM exercise program and a separate one for IBM patients.

Watch Experience of pain and fatigue in adult IIM

Download the slides

Save a copy of the slides used in “Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM).”

Home Exercises, PM and DM

Home exercises for patients with polymyositis and dermatomyositis. Follow the program exactly as it is presented.

Home Exercises, IBM

Home exercises for patients with inclusion body myositis. The program was evaluated with a small study.

Helene Alexanderson is associate professor, PhD, physical therapist at the Karolinska University Hospital and Karolinska Institutet in Stockholm Sweden.

About Helene Alexanderson

Helene Alexanderson is an associate professor, Ph.D., a physical therapist at the Karolinska University Hospital and Karolinska Institutet in Stockholm Sweden. Helene has 20 years of clinical experience in adult myositis and her research focus is clinical and molecular effects of exercise, development of clinical outcome measures and outcome in adult myositis. Helene is a member of the Myositis Association advisory board and co-chair of the International Myositis Assessment and Clinical Study group (IMACS) Exercise and Rehabilitation special interest group as well as the OMERACT (Outcome Measures in Rheumatic Diseases (OMERACT) myositis special interest group.

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

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