Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
Search our site
November 28, 2017 6:30 pm - 8:00 pm
Register today for the MSU Caregivers, Family Members, and Friends online video support session in celebration of our Myositis Caregivers and National Family Caregivers Month. Tuesday, November 28th @ 6:30PM EDT. Join Barbara and Betsy for a discussion about Myositis and Caregiving. Ask questions, share your experience, or just listen and watch. Event is free!
November 30, 2017 3:00 pm - 4:30 pm
IBM patients, mark your calendar and join us for this free video support session with Mary Jane on Nov. 30th, 3PM Eastern Time. Share experiences, ask questions, compare notes, and make new friends. This session is tailored to those diagnosed with, or suspected of having, Inclusion Body Myositis.