Myositis Support and Understanding (MSU)

Email info@UnderstandingMyositis.org
Website https://UnderstandingMyositis.org

Events from this organizer

Today

  • Pain as an under recognized symptom of Myositis

    Featured
    MSU Zoom Video Session Video session using Zoom

    Thursday, May 7 4 PM ET/ 3 PM CT/ 2 PM MT/ 1 PM PT   Pain is a critical but often overlooked symptom in myositis. This webinar will empower patients, caregivers, and healthcare professionals with the knowledge to recognize, assess, and address pain in IIM, fostering better patient-centered care. Don’t miss this opportunity to engage with Dr. Saygin and advance […]

  • Dermatomyositis: Research, Real Life & the Lived Experience of Patients of Color

    Featured
    MSU Zoom Video Session Video session using Zoom

    Wednesday, May 13 7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PT   Join us for a casual, interactive fireside chat exploring new research from UAB and MSU highlighting the diagnostic and psychosocial experiences of people living with dermatomyositis, including important disparities reported by patients of color.  This session will highlight key findings from a recent survey-based […]

  • International Myositis Support

    Featured International Myositis Patient Support
    MSU Zoom Video Session Video session using Zoom

    International Myositis Virtual Support Group for all Myositis patients and their care partners, held on Zoom. This is a fantastic opportunity to connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment.

    Free

  • Travel IS Still Possible: Accessible travel isn’t a dream – it’s a plan and you’re ready to start

    Featured
    MSU Zoom Video Session Video session using Zoom

    Tuesday, May 19 2 PM ET/ 1 PM CT/ 12 PM MT/11 AM PT Let's talk accessible travel with Lesli Wang and MSU!  We all know Lesli as the inventor and manufacturer of the Free2Go Rollator, an award-winning toilet safety and mobility aid.  This device has helped shape the future of accessible and stress free, safer  travel for myositis patients. […]

  • The Hidden Weight of Care: Survey Insights and Creating Your Personal Care Map

    Featured
    MSU Zoom Video Session Video session using Zoom

    Wednesday, May 27 3 PM ET/ 2 PM CT/1 PM MT/ 12 PM PT    Caregiving carries emotional, mental, and physical demands—often over a long and unpredictable journey. This session shares insights from the MSU Carers Survey, highlighting the unique challenges faced by those caring for loved ones with Inclusion Body Myositis (IBM). Led by Marlene and Rod Jansen, this […]

  • Couch Critics Clubhouse

    Featured
    Clubhouse

    The second and fourth Wednesday of each Month  On Clubhouse 3 PM ET/2 PM CT/1 PM MT/ 12 PM PT Join us every second and fourth Wednesday of the month on Clubhouse. All Myositis patients and care partners are welcome. This is a members-only room to provide the safest space possible to share. Join us for support, love, and understanding. […]