Myositis Support and Understanding (MSU)
Events from this organizer
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FeaturedMen with Myositis Clubhouse Support Room
ClubhouseA safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
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Sexual Intimacy with Myositis, “Exclusive for Women with Myositis Group”
MSU Zoom Video Session Video session using ZoomMonday, May 5th on Zoom 4 PM PT / 5 PM MT / 6 PM CT / 7 PM ET Join us for an insightful webinar tailored specifically for the Women with Myositis group. Led by Noelle Benach, a licensed psychotherapist and certified sex therapist, this session will address the unique challenges and strategies for maintaining intimacy while living with […]
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FeaturedWednesday Evening Myositis Support Group
MSU Zoom Video Session Video session using ZoomAll Myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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The Unseen Grief: Recognizing & Healing from Secondary Loss Workshop
MSU Zoom Video Session Video session using ZoomSaturday, May 10th 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET Join us for an interactive workshop, "The Unseen Grief: Recognizing and Healing from Secondary Loss," specifically designed for both individuals affected by myositis and their care partners. This collaborative session will delve into the often-overlooked aspects of grief experienced by those living […]
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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Bi-Monthly Virtual Support Group: Breathe Easy: Myositis Lung Support
MSU Zoom Video Session Video session using ZoomThis group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications.
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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International Myositis Patient Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the third Saturday of each month at 2 PM ET for live video support.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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Care Partner Burnout: Supporting Your Loved One While Taking Care of Yourself
MSU Zoom Video Session Video session using ZoomMonday, May 19th 10 AM PT / 11 AM MT / 12 PM CT / 1 PM ET A fatigue-related health condition doesn’t only impact the life of the person who is ill; it often brings significant changes for their loved ones and caregivers as well. Navigating this adjustment can be challenging, and it can be difficult to know how […]
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Myositis Reads – A Book Club for Those with Myositis
ClubhouseJoin us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
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FeaturedWhat Brings You Joy?
MSU Zoom Video Session Video session using ZoomTuesday, May 20th 4 PM ET / 3 PM CT / 2 PM MT / 1 PM PT Join us for a heartfelt support session in celebration of Myositis Awareness Month. Hosted by acclaimed author Lisa Sniderman of The Grieving Project and Jessica Taylor, Director of Volunteer & Support Operations for MSU, this event marks the third year of this […]
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free -
Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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Myo Night: Making the Best of My Own Night
MSU Zoom Video Session Video session using ZoomThis event is all about embracing your power and celebrating the hero within you. It encourages you to make the best of your night, reinforcing the idea that despite challenges, you can create meaningful moments. Whether you’re participating solo or inviting friends and family, it's an opportunity to share your unique story and celebrate your journey.
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FeaturedIBM Patient Virtual Support Group
MSU Zoom Video Session Video session using ZoomRegister to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
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FeaturedNecrotizing Myopathy Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
