Watch AllStripes IBM Research Update

AllStripes IBM Program Update

If you are living with, or are a caregiver or family member of someone with inclusion body myositis, you can accelerate drug development in IBM!

AllStripes is a platform that makes it easy for rare disease patients and caregivers to contribute to drug development research from home. AllStripes improves the speed and design of drug trials by extracting and analyzing research-grade data from de-identified medical records, creating a pool of new knowledge about each rare condition.

Watch the recording of the webinar to learn more about the IBM program and to see a step-by-step walkthrough of how to sign up to be a part of this empowering research opportunity.

Download the Slides

View the slides to follow along and to access the resources provided during the webinar.

Inclusion Body Myositis (IBM) patients and caregivers - You can help accelerate research.

About the presenters

Charlene Fernandez is the Director of Patient Operations at AllStripesCharlene Fernandez is the Director of Patient Operations at AllStripes, a medical data science company focused on rare disease research. Her passion is bridging the gap between patients and upcoming treatments, including those in clinical trials and drug development. At AllStripes, Charlene streamlines the processes and workflows for patient foundation partnerships and works closely with external stakeholders in the rare disease community for advocacy and research. Charlene has an extensive background in clinical research and regulations through her years working in academic centers of excellence in nephrology, vascular surgery, and oncology. She also worked on Parkinson’s disease, Huntington’s disease, and epilepsy mice models in the Watson Lab at UCLA. She received a bachelor’s degree in Physiological Science from UCLA.

Dr. Caitlin Nichols is a Scientific Affairs and Research Manager at AllStripes,

Dr. Caitlin Nichols is a Scientific Affairs and Research Manager at AllStripes, a medical data science company with the goal of accelerating rare disease research. Throughout her career, Caitlin has been passionate about translating medical data into actionable insights that can improve the lives of patients and their families. At AllStripes, Caitlin designs research studies for industry, academic, and patient group collaborations. She also drives the visualization of AllStripes’ research insight data, with the goal of communicating research progress to patients, communities, and researchers. In addition, Caitlin leads the development of AllStripes’ research ethics policies, consent documents, and research protocols both within the United States and internationally. Prior to her role at AllStripes, Caitlin worked on the Product Science team at 23andMe, where she helped develop and improve carrier status and genetic health risk reports.

Caitlin received a Ph.D. in Biological and Biomedical Sciences from Harvard University, where she studied novel strategies for developing personalized cancer therapeutics. In 2019, she was named a Harvard Horizons Scholar as one of eight students from across the graduate school for the novelty and impact of her work. Caitlin received a bachelor’s degree in Molecular Biology from Brigham Young University.

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

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