Calendar of Events
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Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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1 event,
Featured
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Featured
Monday, April 28th on Zoom 3 PM PT / 4 PM MT / 5 PM CT / 6 PM ET Join us for an insightful webinar focused on exploring the diverse world of automotive mobility solutions. This session aims to educate attendees about the various types of mobility aids available, including driving aids, hand controls, scooter lifts, assist seating, and […] |
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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1 event,
Featured
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Featured
Join Us for The Patient Voice Workshop! We invite you to The Patient Voice Workshop on Friday, May 2, 2025, at the beautiful Huntsville Botanical Gardens in Huntsville, Alabama from 10 AM to 4 PM. (This is an in person event) This enriching event promises insightful sessions and meaningful connections. Highlights Include: Panel Discussion: Engage in powerful storytelling focused on quality […] |
1 event,
Featured
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Featured
Join Myositis Support & Understanding for the Myositis Moon Walk, an extraordinary livestream event that invites participants to embark on a unique journey through the U.S. Space and Rocket Center! Experience the awe of walking alongside iconic rockets and historic space artifacts, all while raising awareness and support for the Myositis community. The route will provide an inspiring backdrop as […] |
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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2 events,
Featured
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Featured
A safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
Free
Monday, May 5th on Zoom 4 PM PT / 5 PM MT / 6 PM CT / 7 PM ET Join us for an insightful webinar tailored specifically for the Women with Myositis group. Led by Noelle Benach, a licensed psychotherapist and certified sex therapist, this session will address the unique challenges and strategies for maintaining intimacy while living with […] |
0 events,
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1 event,
Featured
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Featured
All Myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
Free
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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1 event,
Saturday, May 10th 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET Join us for an interactive workshop, "The Unseen Grief: Recognizing and Healing from Secondary Loss," specifically designed for both individuals affected by myositis and their care partners. This collaborative session will delve into the often-overlooked aspects of grief experienced by those living […] |
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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0 events,
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1 event,
This group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications. |
0 events,
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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1 event,
All myositis patients, register to join us on the third Saturday of each month at 2 PM ET for live video support.
Free
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
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2 events,
Monday, May 19th 10 AM PT / 11 AM MT / 12 PM CT / 1 PM ET A fatigue-related health condition doesn’t only impact the life of the person who is ill; it often brings significant changes for their loved ones and caregivers as well. Navigating this adjustment can be challenging, and it can be difficult to know how […] 
Join us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
Free
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1 event,
Featured
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Featured
Tuesday, May 20th 4 PM ET / 3 PM CT / 2 PM MT / 1 PM PT Join us for a heartfelt support session in celebration of Myositis Awareness Month. Hosted by acclaimed author Lisa Sniderman of The Grieving Project and Jessica Taylor, Director of Volunteer & Support Operations for MSU, this event marks the third year of this […] |
0 events,
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1 event,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
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0 events,
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0 events,
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1 event,
Join our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Free
|
0 events,
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0 events,
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0 events,
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2 events,
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free
This event is all about embracing your power and celebrating the hero within you. It encourages you to make the best of your night, reinforcing the idea that despite challenges, you can create meaningful moments. Whether you’re participating solo or inviting friends and family, it's an opportunity to share your unique story and celebrate your journey. |
1 event,
Featured
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Featured
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
Free
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1 event,
Featured
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Featured
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
Free
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The Patient Voice Workshop
2nd Annual Myositis Moon Walk
What Brings You Joy?
