MSU
Innovative Approaches in Biopharmaceutical Research: Ensuring Patient-Centric Healthcare Solutions
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesIn this webinar, we’ll highlight the impactful collaboration between Galapagos and MSU, focusing on our shared dedication to patient-centric healthcare. Our partnership has been vital in several initiatives, including the collection of patient voices for our ongoing Phase 2 clinical trial. At Galapagos, our research in inflammation and oncology is driven by a commitment to ensure that patient perspectives are […]
Realizing the CAR T Potential in Myositis & Beyond
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesCabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable, perhaps curative, treatment for patients with autoimmune diseases. CABA-201, a CD19-CAR T cell therapy, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases, including adult and juvenile myositis. Tania Gonzalez Rivera, M.D., discusses the application of CAR-T cell […]
Ladies Bingo Night
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesWe are thrilled to invite all women with myositis to a unique one-time event: Ladies Bingo Night, sponsored by Priovant! Get ready for a fun-filled evening where you can enjoy Bingo, connect with fellow myositis warriors, and share in the camaraderie of our incredible community!
This event offers a chance to take a break from the challenges of daily life and simply have fun. Connect with other women who understand what you’re going through while participating in an enjoyable game of Bingo!
Myositis Cancer Support
MSU Zoom Video Session Video session using ZoomWe are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.
Myositis Empower Walk Game Night
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesJoin us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event be hosted by our very own Jessica Taylor, Director of Operations for MSU, alongside Taryn Smith from Priovant.
Get ready for a night filled with trivia, laughter, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th, starting at 4 PM, streaming online.
Your Voice Matters: Practical Strategies for Self-Advocacy in Healthcare
MSU Zoom Video Session Video session using ZoomSpecial Webinar: Your Voice Matters – Practical Strategies for Self-Advocacy in Healthcare! We are thrilled to announce an impactful webinar featuring Meaghan Arnold, a valued member of the Myositis Support and Understanding Medical Advisory Board. This session is designed to empower myositis patients with essential self-advocacy skills! Date: Tuesday, November 19th Time: 2 PM ET / 1 PM CT / […]
Myositis Cancer Support
MSU Zoom Video Session Video session using ZoomWe are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.
Your Health, Your Voice: Building a Lifesaving Medical Binder
MSU Zoom Video Session Video session using ZoomJoin Us for an Empowering Webinar: "Your Health, Your Voice: Building a Lifesaving Medical Binder" with the Three Myositis Musketeers! We are excited to invite you to an essential webinar hosted by Myositis Support and Understanding (MSU). Meet the team: Jessica Taylor, Director of Operations and a dedicated myositis patient; Benita Moyer, Vice President, committed advocate, and myositis patient; and […]
Meet MSU’s New Executive Director – Elisa Glass
MSU Zoom Video Session Video session using ZoomJoin us on February 17th for a special introduction to our first-ever Executive Director, Elisa Glass! Get to know Elisa and hear about her vision for the future of Myositis Support and Understanding (MSU). This is a fantastic opportunity for our community to connect and share ideas. Date: February 17, 2025 Time: 11 AM PT / 12 PM MT / […]
Managing Your Expectations with Exercise and Movement by Kourage Health
MSU Zoom Video Session Video session using ZoomJoin Kourage Health and MSU for an enlightening webinar on Monday, February 24th: "Managing Expectations with Movement & Exercise." Discover how to approach exercise with the right mindset. We'll emphasize that progress isn’t an overnight fix but a journey requiring consistency and repetition. Learn the importance of maintenance and setting realistic expectations, whether you're a beginner, intermediate, or advanced in […]
Shifting Your Mindset
MSU Zoom Video Session Video session using Zoom6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset! This empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the last seven months, we have embarked on a transformative journey together! ✨ Discover Your […]
Standards of Care for Home Infusion
MSU Zoom Video Session Video session using ZoomDate: April 15th Time: 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT Platform: Zoom Hosted by: IV Solutions Rx Join us for an informative webinar on Standards of Care for Home Infusion, designed to equip patients and caregivers with vital knowledge about home infusion therapy. This session will cover a comprehensive range of […]
Myositis Cancer Support
MSU Zoom Video Session Video session using ZoomWe are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.
Webinar: Automotive Mobility Solutions – Features & Benefits
MSU Zoom Video Session Video session using ZoomMonday, April 28th on Zoom 3 PM PT / 4 PM MT / 5 PM CT / 6 PM ET Join us for an insightful webinar focused on exploring the diverse world of automotive mobility solutions. This session aims to educate attendees about the various types of mobility aids available, including driving aids, hand controls, scooter lifts, assist seating, and […]
The Patient Voice Workshop
Other PlatformJoin Us for The Patient Voice Workshop! We invite you to The Patient Voice Workshop on Friday, May 2, 2025, at the beautiful Huntsville Botanical Gardens in Huntsville, Alabama from 10 AM to 4 PM. (This is an in person event) This enriching event promises insightful sessions and meaningful connections. Highlights Include: Panel Discussion: Engage in powerful storytelling focused on quality […]
2nd Annual Myositis Moon Walk
MSU Live YouTube MSU YouTube PageJoin Myositis Support & Understanding for the Myositis Moon Walk, an extraordinary livestream event that invites participants to embark on a unique journey through the U.S. Space and Rocket Center! Experience the awe of walking alongside iconic rockets and historic space artifacts, all while raising awareness and support for the Myositis community. The route will provide an inspiring backdrop as […]
Sexual Intimacy with Myositis, “Exclusive for Women with Myositis Group”
MSU Zoom Video Session Video session using ZoomMonday, May 5th on Zoom 4 PM PT / 5 PM MT / 6 PM CT / 7 PM ET Join us for an insightful webinar tailored specifically for the Women with Myositis group. Led by Noelle Benach, a licensed psychotherapist and certified sex therapist, this session will address the unique challenges and strategies for maintaining intimacy while living with […]
The Unseen Grief: Recognizing & Healing from Secondary Loss Workshop
MSU Zoom Video Session Video session using ZoomSaturday, May 10th 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET Join us for an interactive workshop, "The Unseen Grief: Recognizing and Healing from Secondary Loss," specifically designed for both individuals affected by myositis and their care partners. This collaborative session will delve into the often-overlooked aspects of grief experienced by those living […]
Bi-Monthly Virtual Support Group: Breathe Easy: Myositis Lung Support
MSU Zoom Video Session Video session using ZoomThis group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications.
