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20 events found.

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Today
  • May 2025

  • Tue 13
    Featured May 13, 2025 @ 7:00 pm - 9:00 pm EDT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Bi-Monthly Virtual Support Group: Breathe Easy: Myositis Lung Support

    MSU Zoom Video Session Video session using Zoom

    This group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications.

  • Mon 19
    Featured May 19, 2025 @ 1:00 pm - 2:30 pm EDT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Care Partner Burnout: Supporting Your Loved One While Taking Care of Yourself

    MSU Zoom Video Session Video session using Zoom

    Monday, May 19th 10 AM PT / 11 AM MT / 12 PM CT / 1 PM ET A fatigue-related health condition doesn’t only impact the life of the person who is ill; it often brings significant changes for their loved ones and caregivers as well. Navigating this adjustment can be challenging, and it can be difficult to know how […]

  • Tue 20
    Featured May 20, 2025 @ 4:00 pm - 5:30 pm EDT

    What Brings You Joy?

    MSU Zoom Video Session Video session using Zoom

    Tuesday, May 20th 4 PM ET / 3 PM CT / 2 PM MT / 1 PM PT Join us for a heartfelt support session in celebration of Myositis Awareness Month. Hosted by acclaimed author Lisa Sniderman of The Grieving Project and Jessica Taylor, Director of Volunteer & Support Operations for MSU, this event marks the third year of this […]

  • Thu 29
    Featured May 29, 2025 @ 7:00 pm - 8:00 pm EDT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Myo Night: Making the Best of My Own Night

    MSU Zoom Video Session Video session using Zoom

    This event is all about embracing your power and celebrating the hero within you. It encourages you to make the best of your night, reinforcing the idea that despite challenges, you can create meaningful moments. Whether you’re participating solo or inviting friends and family, it's an opportunity to share your unique story and celebrate your journey.

  • June 2025

  • Mon 9
    Featured June 9, 2025 @ 2:00 pm - 3:30 pm EDT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Talented & Unstoppable: Navigating the Job Market with Confidence

    MSU Zoom Video Session Video session using Zoom

    Monday, June 9th 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET Are you ready to navigate the job market with confidence? Join us for "Talented & Unstoppable: Navigating the Job Market with Confidence," a dynamic and informative webinar designed to empower job seekers and equip them with essential tools for success.  This engaging […]

  • Mon 9
    Featured June 9, 2025 @ 7:00 pm - 8:00 pm EDT Young Adults with Myositis – MSU YA Collective Power Hour

    Young Adults with Myositis – MSU YA Collective Power Hour

    MSU Zoom Video Session Video session using Zoom

    2nd Monday of Every Month 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT MSU Young Adult Collective Power Hour Join fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood […]

  • Wed 11
    Featured June 11, 2025 @ 7:00 pm - 8:00 pm EDT Couch Critics

    Couch Critics

    MSU Zoom Video Session Video session using Zoom

    2nd & 4th Wednesday of Each Month- Starting June 11th 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT "Couch Critics" – A Movie Club for the Myositis Community!  Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient […]

  • Wed 25
    Featured June 25, 2025 @ 3:00 pm - 4:00 pm EDT Couch Critics

    Couch Critics

    MSU Zoom Video Session Video session using Zoom

    4th Wednesday of Each Month 3 PM ET / 2 PM CT / 1 PM MT / 12 PM PT "Couch Critics" – A Movie Club for the Myositis Community!  Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient or a care partner, this […]

    Free
  • July 2025

  • Tue 8
    Featured July 8, 2025 @ 7:00 pm - 9:00 pm EDT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Bi-Monthly Virtual Support Group: Breathe Easy: Myositis Lung Support

    MSU Zoom Video Session Video session using Zoom

    This group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications.

  • Wed 9
    Featured July 9, 2025 @ 7:00 pm - 8:00 pm EDT Couch Critics

    Couch Critics

    MSU Zoom Video Session Video session using Zoom

    2nd & 4th Wednesday of Each Month- Starting June 11th 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT "Couch Critics" – A Movie Club for the Myositis Community!  Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient […]

  • Mon 14
    Featured July 14, 2025 @ 7:00 pm - 8:00 pm EDT Young Adults with Myositis – MSU YA Collective Power Hour

    Young Adults with Myositis – MSU YA Collective Power Hour

    MSU Zoom Video Session Video session using Zoom

    2nd Monday of Every Month 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT MSU Young Adult Collective Power Hour Join fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood […]

  • Wed 16
    Featured July 16, 2025 @ 7:00 pm - 8:30 pm EDT Myosits Cancer Support

    Myositis Cancer Support

    MSU Zoom Video Session Video session using Zoom

    We are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.

  • Wed 23
    Featured July 23, 2025 @ 3:00 pm - 4:00 pm EDT Couch Critics

    Couch Critics

    MSU Zoom Video Session Video session using Zoom

    4th Wednesday of Each Month 3 PM ET / 2 PM CT / 1 PM MT / 12 PM PT "Couch Critics" – A Movie Club for the Myositis Community!  Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient or a care partner, this […]

    Free
  • Sat 26
    Featured July 26, 2025 @ 3:00 pm - 4:00 pm EDT Finding Our Balance: Navigating Myositis & Dysautonomia

    Finding Our Balance: Navigating Myositis & Dysautonomia

    MSU Zoom Video Session Video session using Zoom

    Are you living with Myositis and also dealing with Dysautonomia or suspect you might be? You're not alone! It's common for autoimmune conditions like Myositis to co-occur with Dysautonomia. Join our support group, offering a safe and nurturing space for individuals managing both conditions. This is an opportunity to share experiences, find comfort in the community, and exchange tips and […]

  • August 2025

  • Mon 11
    Featured August 11, 2025 @ 7:00 pm - 8:00 pm EDT Young Adults with Myositis – MSU YA Collective Power Hour

    Young Adults with Myositis – MSU YA Collective Power Hour

    MSU Zoom Video Session Video session using Zoom

    2nd Monday of Every Month 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT MSU Young Adult Collective Power Hour Join fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood […]

  • Wed 13
    Featured August 13, 2025 @ 7:00 pm - 8:00 pm EDT Couch Critics

    Couch Critics

    MSU Zoom Video Session Video session using Zoom

    2nd & 4th Wednesday of Each Month- Starting June 11th 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT "Couch Critics" – A Movie Club for the Myositis Community!  Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient […]

  • Wed 27
    Featured August 27, 2025 @ 3:00 pm - 4:00 pm EDT Couch Critics

    Couch Critics

    MSU Zoom Video Session Video session using Zoom

    4th Wednesday of Each Month 3 PM ET / 2 PM CT / 1 PM MT / 12 PM PT "Couch Critics" – A Movie Club for the Myositis Community!  Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient or a care partner, this […]

    Free
  • Sat 30
    Featured August 30, 2025 @ 11:00 am - 6:15 pm EDT

    MYOCONNECT Summit – A Call to Action

    MSU Zoom Video Session Video session using Zoom

    We are excited to invite you to register now for the MYOCONNECT Virtual Summit, hosted by Myositis Support and Understanding (MSU). This landmark event marks the launch of the MYOCONNECT Education and Empowerment Forum, a new platform dedicated to putting patients’ voices first through trusted, patient-focused education and powerful resources.  Summit Date: August 30th | 11 AM – 6 PM […]

  • September 2025

  • Mon 8
    Featured September 8, 2025 @ 7:00 pm - 8:00 pm EDT Young Adults with Myositis – MSU YA Collective Power Hour

    Young Adults with Myositis – MSU YA Collective Power Hour

    MSU Zoom Video Session Video session using Zoom

    2nd Monday of Every Month 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT MSU Young Adult Collective Power Hour Join fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood […]

  • Tue 9
    Featured September 9, 2025 @ 7:00 pm - 9:00 pm EDT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Bi-Monthly Virtual Support Group: Breathe Easy: Myositis Lung Support

    MSU Zoom Video Session Video session using Zoom

    This group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications.

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