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  • Featured

    Innovative Approaches in Biopharmaceutical Research: Ensuring Patient-Centric Healthcare Solutions

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    In this webinar, we’ll highlight the impactful collaboration between Galapagos and MSU, focusing on our shared dedication to patient-centric healthcare. Our partnership has been vital in several initiatives, including the collection of patient voices for our ongoing Phase 2 clinical trial. At Galapagos, our research in inflammation and oncology is driven by a commitment to ensure that patient perspectives are […]

  • Featured

    Realizing the CAR T Potential in Myositis & Beyond

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    Cabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable, perhaps curative, treatment for patients with autoimmune diseases. CABA-201, a CD19-CAR T cell therapy, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases, including adult and juvenile myositis. Tania Gonzalez Rivera, M.D., discusses the application of CAR-T cell […]

  • Featured

    Ladies Bingo Night

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    We are thrilled to invite all women with myositis to a unique one-time event: Ladies Bingo Night, sponsored by Priovant! Get ready for a fun-filled evening where you can enjoy Bingo, connect with fellow myositis warriors, and share in the camaraderie of our incredible community!

    This event offers a chance to take a break from the challenges of daily life and simply have fun. Connect with other women who understand what you’re going through while participating in an enjoyable game of Bingo!

  • Featured Myosits Cancer Support

    Myositis Cancer Support

    MSU Zoom Video Session Video session using Zoom

    We are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.

  • Featured

    Myositis Empower Walk Game Night

    ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United States

    Join us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event be hosted by our very own Jessica Taylor, Director of Operations for MSU, alongside Taryn Smith from Priovant.

    Get ready for a night filled with trivia, laughter, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th, starting at 4 PM, streaming online.

  • Featured Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Your Voice Matters: Practical Strategies for Self-Advocacy in Healthcare

    MSU Zoom Video Session Video session using Zoom

    Special Webinar: Your Voice Matters – Practical Strategies for Self-Advocacy in Healthcare! We are thrilled to announce an impactful webinar featuring Meaghan Arnold, a valued member of the Myositis Support and Understanding Medical Advisory Board. This session is designed to empower myositis patients with essential self-advocacy skills! Date: Tuesday, November 19th Time: 2 PM ET / 1 PM CT / […]

  • Featured Myosits Cancer Support

    Myositis Cancer Support

    MSU Zoom Video Session Video session using Zoom

    We are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.

  • Featured Living Fully with Myositis: MSU’s #MyositisLife Initiative Series

    Your Health, Your Voice: Building a Lifesaving Medical Binder

    MSU Zoom Video Session Video session using Zoom

    Join Us for an Empowering Webinar: "Your Health, Your Voice: Building a Lifesaving Medical Binder" with the Three Myositis Musketeers! We are excited to invite you to an essential webinar hosted by Myositis Support and Understanding (MSU). Meet the team: Jessica Taylor, Director of Operations and a dedicated myositis patient; Benita Moyer, Vice President, committed advocate, and myositis patient; and […]

  • Featured

    Meet MSU’s New Executive Director – Elisa Glass

    MSU Zoom Video Session Video session using Zoom

    Join us on February 17th for a special introduction to our first-ever Executive Director, Elisa Glass! Get to know Elisa and hear about her vision for the future of Myositis Support and Understanding (MSU). This is a fantastic opportunity for our community to connect and share ideas. Date: February 17, 2025 Time: 11 AM PT / 12 PM MT / […]

  • Featured

    Managing Your Expectations with Exercise and Movement by Kourage Health

    MSU Zoom Video Session Video session using Zoom

    Join Kourage Health and MSU for an enlightening webinar on Monday, February 24th: "Managing Expectations with Movement & Exercise." Discover how to approach exercise with the right mindset. We'll emphasize that progress isn’t an overnight fix but a journey requiring consistency and repetition. Learn the importance of maintenance and setting realistic expectations, whether you're a beginner, intermediate, or advanced in […]

  • Featured

    Shifting Your Mindset

    MSU Zoom Video Session Video session using Zoom

    6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT Living Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset! This empowering Shifting Your Mindset series, designed specifically for those living with Myositis. Over the last seven months, we have embarked on a transformative journey together! ✨ Discover Your […]