What is Juvenile Dermatomyositis?

Juvenile dermatomyositis (JDM) is a rare autoimmune inflammatory disease affecting the muscles, blood vessels and skin. JDM affects approximately 3 in every 1 million children each year. Patients with JDM have weakness in the muscles around the neck, shoulders, hips and thighs. This makes it difficult to climb stairs, rise from a chair, wash hair and get off the floor. The skin rash associated with JDM is typically red or purple in color and can be found on the eyelids, knuckles, ankles and knees.

Children with JDM sometimes develop calcinosis, small lumps of calcium under the skin or in the muscles. There is no cure for JDM, however there are several treatment options which can lessen the symptoms.

Find full information here: Juvenile Dermatomyositis

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

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Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: What is Juvenile Dermatomyositis?! The link is included below: https://understandingmyositis.org/juvenile-dermatomyositis/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.